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Useful Websites for Stiff Person Syndrome

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    Useful Websites for Stiff Person Syndrome

    A very comprehensive and thoughtful website that covers so many aspects of SPS is:
    Only registered and activated users can see links., Click Here To Register...

    This was put together by a person with SPS who clearly has some type of scientific background. It also has research footnotes if you want to explore further some of her topics.

    #2
    Only registered and activated users can see links., Click Here To Register...

    This is a compendium of Rare diseases. SPS is on it and has useful information.

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      #3
      This is another website about SPS, and it is from NIH. It is a great place to explore even if you know a lot about SPS already. Its also helpful to give to your docs who know nothing about SPS
      Only registered and activated users can see links., Click Here To Register...

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        #4
        A great essay on invisible illness, from someone who has SPS

        Only registered and activated users can see links., Click Here To Register...

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          #5
          Only registered and activated users can see links., Click Here To Register...
          A great blog by a man with SPS
          Last edited by Sunshine 2; 07-16-2021, 09:05 AM.

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            #6
            Have you ever thought about inviting some of these people with SPS to this forum? You could have some company here if they'd join.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatiramer acetate since December 2020.

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              #7
              Originally posted by agate View Post
              Have you ever thought about inviting some of these people with SPS to this forum? You could have some company here if they'd join.
              Yes, I have invited them to join. But so far, no takers. I suspect they read, but don’t register.

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