Stiff Person in the News Feed

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In the previous post, the word "Live" should have been "Lives." Sorry!

Another person with SPS in the news--this time in the UK. From NHS Blood and Transplant (February 27, 2023)--"Mum with incurable 'one in a million' disease supports need for plasma donors":

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Interesting article (in Elle, February 25)--"A Look into the Daily Live of Those Living with Stiff-Person Syndrome":

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And here's another.

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Another person with SPS in the news--he's going to Seattle to take part in a clinical trial:

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Céline Dion's holiday message (I hope this video will work):

https://www.instagram.com/p/CmjbLH2BpHN/

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Here's one from MedPage Today (December 12, 2022):

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[agate]

There has been a real flurry of interest in SPS now. I could post links to about 20 periodicals that have recent articles about it, but many of them aren't saying anything new. Still there might be some point in showing how one celebrity's diagnosis can trigger such a lot of interest. Sunshine, just let me know if you'd like the links posted.

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Something about Céline Dion's SPS (NBC News, December 8):

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Here's a story involving someone in Australia with SPS--including a photo showing this person's bathroom modifications:

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(from 9now.com)

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And this story is from Idaho:

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Another story about someone with SPS, with a link to a GoFundMe page:

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Every article about someone with SPS is probably valuable because it calls attention to this little-known disorder. This 49-year-old man can't hug his family because even a touch from someone sends his body into a spasm.

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Another SPS person in the news, though the amount of time that has passed since the dx isn't clear in the article:

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This young person has stiff-person syndrome and lives with a feeding tube:

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Another news story about someone with stiff-person syndrome:

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