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    #61
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    A story of a man in Montana that was diagnosed with SPS after 7 years of misdiagnosis; his journey. His sounds relatively mild in that he does not need a wheelchair full time, but bad enough as it is.

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      #62
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      This is a. Great website written by the man in Montana on his journey with SPS
      Last edited by Sunshine 2; 07-16-2021, 09:05 AM.

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        #63
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        This is a news story about a man with SPS in Australia who said that MMJ was the only way to combat the spasticity pain

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          #64
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          Three interesting case studies of SPS

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            #65
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            unsolved mysteries that still baffle scientists

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              #66
              Having a very rare disorder must make a person feel quite alone. It's not always comforting to be told you're one in a million.

              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                #67
                Another news story about someone with stiff-person syndrome:

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                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                  #68
                  This young person has stiff-person syndrome and lives with a feeding tube:

                  Only registered and activated users can see links., Click Here To Register...
                  SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                    #69
                    Another SPS person in the news, though the amount of time that has passed since the dx isn't clear in the article:

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                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                      #70
                      Every article about someone with SPS is probably valuable because it calls attention to this little-known disorder. This 49-year-old man can't hug his family because even a touch from someone sends his body into a spasm.

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                      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                        #71
                        Another story about someone with SPS, with a link to a GoFundMe page:

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                        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                          #72
                          And this story is from Idaho:

                          Only registered and activated users can see links., Click Here To Register...
                          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                            #73
                            Here's a story involving someone in Australia with SPS--including a photo showing this person's bathroom modifications:

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                            (from 9now.com)
                            Last edited by agate; 10-04-2022, 04:34 PM.
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                              #74
                              Something about Céline Dion's SPS (NBC News, December 8):

                              Only registered and activated users can see links., Click Here To Register...
                              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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                                #75
                                There has been a real flurry of interest in SPS now. I could post links to about 20 periodicals that have recent articles about it, but many of them aren't saying anything new. Still there might be some point in showing how one celebrity's diagnosis can trigger such a lot of interest. Sunshine, just let me know if you'd like the links posted.
                                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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