Announcement

Collapse
No announcement yet.

Both my kids have Chiari

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Both my kids have Chiari

    I was here several years ago (LIZARD). I have hydrocephalus. My son was dx'ed with Chiari at 5 1/2 (now 27). He's also autistic. Well...three years ago, my daughter called me from a hospital in VA (where she lives), saying she went in with a fever a stiff neck. I immediately thought meningitis, but she said she was checked and didn't have it. She did have Chiari and Lyme.

    So since then, I've wondered. I have never been told I have Chiari and am not aware of any signs, so where did this come from??!! Anyone relate?

    #2
    ((((((LIZARD)))))) ~

    BACK TO BRAINTALK!

    I remember you! My "home forum" is Child Neurology, but many of our kids had hydrocephalus, so I visited and posted there many times.

    Unfortunately, this forum hasn't been active for awhile, so I don't know whether you will receive a response from someone, who has experience and knowledge.

    However, I am a mom of two sons, who had multiple disabilities, so I can certainly support you through this journey.

    While you wait for an experienced and knowledgeable person, you might try scouring the internet for all of the available information about Chiari. If you have a neurologist, or even your PCP, you could ask for guidance and information from them.

    This must be stressful for you and your children. Sending prayers and healing, positive energy to all of you.

    Love & Light,

    ❤️❤️❤️❤️

    Rose

    *Virtual Hugs Are Germ-Free!


    THANKS!


    Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

    Comment


      #3
      LIZARD, I don't know if this will be of any help to you but it provides some basic information about Chiari malformation:

      Only registered and activated users can see links., Click Here To Register...
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatiramer acetate since December 2020.

      Comment

      Working...
      X