I am at the end of my tether with headaches. I have had headaches on and off for about three years but since December 2010 they have got much worse in intensity and have changed from the norm. I had 12 days of constant headache that stopped last week and I woke up this morning and it was there again.I told someone who said I should look up CSF leaks.
If I tell you my symptoms, can you tell me what you think please, seeing as you are all suffering with this.
Headache made much worse by standing and lately even just by sitting. Made worse by coughing and sneezing. Gets better when I lay down - but dull headache remains.
Lots of hearing issues with my left ear since the beginning of this year too but seems to coincide with the headaches. Last week I had intermittent hearing in the left ear, lots of tinnitus left ear (high pitched sound and a hissing), popping sound in my left ear, painful hearing with certain noises. I was pretty scared when my hearing went last week - it was like having headphones on but there was a faulty connection in the left side, and turning on and off.
Edit to add, I am also aware of a whooshing noise - like I can hear the blood whooshing through the back of my skull and neck with my heartbeat.
Really nauseous to the point of vomiting esp when I brush my teeth (this never happened before last week) and my right nostril run like crazy.
This morning, even straightening my head up made the headache worse. I have been getting a horrid salty taste down my throat today.
I was given an MRI brachial plexus as they thought I had thoracic outlet syndrome as I was getting shoulder, neck and arm pain (left arm)and also numbness in my hand constantly since March 19th 2011. The MRI was clear of any compression in that area.
I have serious stiff neck pain (not all the time but daily) which is worse when I get headaches(it feels like my spine is getting caught on my skull)- had an MRI and it showed MINIMAL bone spurs not enough to cause this pain and symptoms.
I am woken in the night by tremors in my upper arm so much so that my arm is really aching and stiff the next morning.
And I get really sensitve smell - things are just disgustingly strong - normally I have a poor sense of smell.
I have had painful pins and needles in the back/top of my scalp a few times too.
I have been diagnosed with ehlers danlos and autonomic dysfunction and read that CSF leaks can be related with ehlers danlos.
I am due for a neuro appointment in London in a few months but these headaches have me worried.
I know there are no docs on here, but friendly advice would be appreciated.
Lou
If I tell you my symptoms, can you tell me what you think please, seeing as you are all suffering with this.
Headache made much worse by standing and lately even just by sitting. Made worse by coughing and sneezing. Gets better when I lay down - but dull headache remains.
Lots of hearing issues with my left ear since the beginning of this year too but seems to coincide with the headaches. Last week I had intermittent hearing in the left ear, lots of tinnitus left ear (high pitched sound and a hissing), popping sound in my left ear, painful hearing with certain noises. I was pretty scared when my hearing went last week - it was like having headphones on but there was a faulty connection in the left side, and turning on and off.
Edit to add, I am also aware of a whooshing noise - like I can hear the blood whooshing through the back of my skull and neck with my heartbeat.
Really nauseous to the point of vomiting esp when I brush my teeth (this never happened before last week) and my right nostril run like crazy.
This morning, even straightening my head up made the headache worse. I have been getting a horrid salty taste down my throat today.
I was given an MRI brachial plexus as they thought I had thoracic outlet syndrome as I was getting shoulder, neck and arm pain (left arm)and also numbness in my hand constantly since March 19th 2011. The MRI was clear of any compression in that area.
I have serious stiff neck pain (not all the time but daily) which is worse when I get headaches(it feels like my spine is getting caught on my skull)- had an MRI and it showed MINIMAL bone spurs not enough to cause this pain and symptoms.
I am woken in the night by tremors in my upper arm so much so that my arm is really aching and stiff the next morning.
And I get really sensitve smell - things are just disgustingly strong - normally I have a poor sense of smell.
I have had painful pins and needles in the back/top of my scalp a few times too.
I have been diagnosed with ehlers danlos and autonomic dysfunction and read that CSF leaks can be related with ehlers danlos.
I am due for a neuro appointment in London in a few months but these headaches have me worried.
I know there are no docs on here, but friendly advice would be appreciated.
Lou
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