Hi everyone,
I now suspect that what I've been having the last couple of weeks are painful tonic spasms. I have not been able to see a neuro yet or get any MRI's, but both should be in the near future.
I have been taking baclofen, which isn't a lot of help, but it's something for now.
Here's what happens. First, mine are left sided and affect the whole left side: arms, hands, back, knees, legs, feet. I get a certain sensation and know it's going to happen. I go down on my left side and experience painful spasms, with my hand becoming claw-like, a lot of pain in the arm, hip, and low back, down the whole leg. I would describe it as like a labor contraction, intense pain, lasting about 15 seconds. It's quite awful and I am only getting around with a walker in the house, would not go out in public without a wheelchair/scooter, which I don't have. They are rather like seizures.
I've read about them online and see that epilepsy drugs have been used with some success, also a drug called misoprostol (Cytotec).
Has anyone experienced these type of spasms and had success with a certain drug? I'd like to be able to talk to the neuro about it with a little knowledge behind me.
Thanks for any help or hugs I can get! Gretchen
I now suspect that what I've been having the last couple of weeks are painful tonic spasms. I have not been able to see a neuro yet or get any MRI's, but both should be in the near future.
I have been taking baclofen, which isn't a lot of help, but it's something for now.
Here's what happens. First, mine are left sided and affect the whole left side: arms, hands, back, knees, legs, feet. I get a certain sensation and know it's going to happen. I go down on my left side and experience painful spasms, with my hand becoming claw-like, a lot of pain in the arm, hip, and low back, down the whole leg. I would describe it as like a labor contraction, intense pain, lasting about 15 seconds. It's quite awful and I am only getting around with a walker in the house, would not go out in public without a wheelchair/scooter, which I don't have. They are rather like seizures.
I've read about them online and see that epilepsy drugs have been used with some success, also a drug called misoprostol (Cytotec).
Has anyone experienced these type of spasms and had success with a certain drug? I'd like to be able to talk to the neuro about it with a little knowledge behind me.
Thanks for any help or hugs I can get! Gretchen
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