Results 1 to 5 of 5

Thread: Approved research study for epilepsy patients

  1. #1
    Administrator/SYSOP Mike Weins's Avatar
    Join Date
    Oct 2006
    Posts
    952
    Blog Entries
    1

    Thumbs up Approved research study for epilepsy patients

    Howdy folks

    I have just approved a research study for epilepsy patients by a student at St. Olaf College in Northfield, MN. It should be posted by username LMeiners sometime over the next few days. As always your participation in this study is completely voluntary. I have been assured that:

    no personal identifiers will be asked of patients. All data will be analyzed in aggregate, stored in a secure electronic location, and the raw data will be destroyed upon completion of analysis. The survey will take only 10-15 minutes of patientsí time, and results from my study will be shared only with a very limited audience of medical professionals in addition to St. Olaf students and faculty.
    Question: Why can't I post links or pictures?
    Question: Why can't I have a signature, avatar, or profile picture?
    Question: What's wrong with my account?

    Answer: You are in the "registered users" user group. This group is very limited in what it can do. This will annoy spammers to no end Just keep posting once you have been registered for 30 days and have made 11 posts your account will be "unlocked".

    It's really easy to put someone on ignore and it's strongly recommended that you do so with people who's posts you don't like.

    Step 1 - log in
    Step 2 - click on the "settings" link
    Step 3 - click on the "edit ignore list" link on the left side of the screen
    Step 4 - type (or paste if you copied and pasted it) the username of the person you want to ignore
    Step 5 - click the "ok" button on the right of the screen

    Easy peasy and will lower your blood pressure. One important note though, this won't hide quoted posts. It's an oversight on the developers part and it's not an easy thing to "fix." So if someone quotes someone you have ignored, you'll see the quote.

    Alternatively when you click on a person's name and view their profile page, underneath their avatar, there is a option that says, "Ignore this person". Click that link and then click the yes button.

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,041
    Blog Entries
    1

    Default

    ((((((Mike))))))

    Thanks for informing us, Mike.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  3. #3
    Administrator/SYSOP Mike Weins's Avatar
    Join Date
    Oct 2006
    Posts
    952
    Blog Entries
    1

    Default

    Hmm wonder why they haven't posted it yet.
    Question: Why can't I post links or pictures?
    Question: Why can't I have a signature, avatar, or profile picture?
    Question: What's wrong with my account?

    Answer: You are in the "registered users" user group. This group is very limited in what it can do. This will annoy spammers to no end Just keep posting once you have been registered for 30 days and have made 11 posts your account will be "unlocked".

    It's really easy to put someone on ignore and it's strongly recommended that you do so with people who's posts you don't like.

    Step 1 - log in
    Step 2 - click on the "settings" link
    Step 3 - click on the "edit ignore list" link on the left side of the screen
    Step 4 - type (or paste if you copied and pasted it) the username of the person you want to ignore
    Step 5 - click the "ok" button on the right of the screen

    Easy peasy and will lower your blood pressure. One important note though, this won't hide quoted posts. It's an oversight on the developers part and it's not an easy thing to "fix." So if someone quotes someone you have ignored, you'll see the quote.

    Alternatively when you click on a person's name and view their profile page, underneath their avatar, there is a option that says, "Ignore this person". Click that link and then click the yes button.

  4. #4
    Community Member
    Join Date
    Aug 2008
    Location
    Minnesota
    Posts
    97

    Default

    They did post the survey on FB in at least one group relating to E just FYI.

    --Travis

  5. #5
    Administrator/SYSOP Mike Weins's Avatar
    Join Date
    Oct 2006
    Posts
    952
    Blog Entries
    1

    Default

    I haven't had any contact after their initial request
    Question: Why can't I post links or pictures?
    Question: Why can't I have a signature, avatar, or profile picture?
    Question: What's wrong with my account?

    Answer: You are in the "registered users" user group. This group is very limited in what it can do. This will annoy spammers to no end Just keep posting once you have been registered for 30 days and have made 11 posts your account will be "unlocked".

    It's really easy to put someone on ignore and it's strongly recommended that you do so with people who's posts you don't like.

    Step 1 - log in
    Step 2 - click on the "settings" link
    Step 3 - click on the "edit ignore list" link on the left side of the screen
    Step 4 - type (or paste if you copied and pasted it) the username of the person you want to ignore
    Step 5 - click the "ok" button on the right of the screen

    Easy peasy and will lower your blood pressure. One important note though, this won't hide quoted posts. It's an oversight on the developers part and it's not an easy thing to "fix." So if someone quotes someone you have ignored, you'll see the quote.

    Alternatively when you click on a person's name and view their profile page, underneath their avatar, there is a option that says, "Ignore this person". Click that link and then click the yes button.

Similar Threads

  1. Approved survey regarding patients/caregivers and internet forums
    By Mike Weins in forum BrainTalk's feedback forum
    Replies: 13
    Last Post: 04-11-2013, 11:51 AM
  2. Approved research study about people with Multiple Sclerosis
    By Mike Weins in forum BrainTalk's feedback forum
    Replies: 5
    Last Post: 03-07-2013, 03:33 AM
  3. Type A, ICE, & Fibro Research
    By Beader in forum Fibromyalgia
    Replies: 1
    Last Post: 03-20-2012, 08:37 PM
  4. I've been approved for Disability!!
    By Smiling Angel in forum Chronic Pain
    Replies: 9
    Last Post: 10-15-2011, 12:55 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.