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Thread: Help

  1. #1
    New Community Member
    Join Date
    May 2013
    Dubai, United Arab Emirates

    Default Help

    Hello everyone,

    I have an eight year old girl with neurological disorder, she was born with occipital encephalocelle and had a repair of meningocelle just hours after she was born, later developed hydrocephalus at three months, has a VP Shunt. She has chronic constipation and can not go without medication. Epileptic and has cerebral palsy right side of the body. she is an angel, and we have ups and downs though the past few months she has been more aggressive than before as well as frequent tempers throughout the day.

    I would not to start medication as the side effects worry me, is there anyone who has ideas that can help ?

    I like taking her for outings and play areas but now its become a real challenge as she battles and kicks and pushes and screams.
    She has a younger sister 4 years old and she often gets angry at her too and screams if the young one calls me mom or I call my youngest child by name, she says only me, only my name and this is even when my other kids call me, she also gets angry. She has always been possessive but now she gets angry for longer and frequent.
    If anyone has had a child with similar problems please share ideas.

  2. #2
    Distinguished Community Member
    Join Date
    Oct 2006
    Blog Entries


    Hi Yusra's Mom and welcome to Braintalk. I hope you don't mind - I've copied your post into the Child Neurology section of this website - there are lots of very friendly Moms there with experience in conditions such as your daughter's. I hope you'll have lots of info and support in no time at all!
    Warm welcome, Donna
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog:

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