I have no clue what I'm doing here....just that I had an episode of some sort, a blip on the EEG, and the hospital neuro working me up for left temporal lobe epilepsy.....I was advised to keep a seizure log. Only problem is, I don't know when/if I am having a seizure. Even the episode that landed me in the hospital was not with me jerking or flailing on the floor as seizures are commonly displayed....
I had a second opinion visit with a different neurologist who didn't think I was having seizures and thinks I may have had a migraine black out. Only problem is, I don't get migraines. I rarely get headaches. I don't get migraines.
This is so very frustrating. No one seems to know what's going on. I can't drive (which is frustratingly difficult as a mother of four). The meds they have me taking as a precaution (Trileptal) seems to be giving me a rash. I can't get the prescribing doctor to call me back on this, but from what I read, it is not advisable to quit taking it cold turkey. I feel as if I am in "hurry up and wait" mode.
Anyone else out there experience anything similar to this?
I had a second opinion visit with a different neurologist who didn't think I was having seizures and thinks I may have had a migraine black out. Only problem is, I don't get migraines. I rarely get headaches. I don't get migraines.
This is so very frustrating. No one seems to know what's going on. I can't drive (which is frustratingly difficult as a mother of four). The meds they have me taking as a precaution (Trileptal) seems to be giving me a rash. I can't get the prescribing doctor to call me back on this, but from what I read, it is not advisable to quit taking it cold turkey. I feel as if I am in "hurry up and wait" mode.
Anyone else out there experience anything similar to this?
Comment