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Thread: Acceptance of epilepsy

  1. #1
    Distinguished Community Member howdydave's Avatar
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    Default Acceptance of epilepsy

    My steps in the acceptance of my epilepsy:

    Epilepsy! -- What's epilepsy?

    Denial
    No I DON'T have epilepsy!

    Why me?
    Why is God punishing me?

    I'm some sort of freak!
    My life is ruined!
    I can't do any of the things that I want to do!

    OK I have epilepsy...
    Guess I'm going to have to learn to live with it!
    Now I'll find out who my REAL friends are!

    I am not an epileptic, I am a person who happens to have epilepsy!
    Lots of great people have had epilepsy!

    Life goes on.

    Epilepsy/epileptic what's the big deal?
    People with diabetes are diabetic; people with asthma are asthmatic.
    It's just a word...

    Epilepsy is just one facet of what makes me ME!
    This is ME, take it or leave it!
    (It took me more than 35 years to get to this last step!)





    Some of these steps were simultanious.
    I got past some of these steps very quickly (less than a week.)
    Some of these steps took several years to get past.


    If you had additional steps or if your sequence was different, please share!
    Last edited by howdydave; 08-23-2011 at 10:28 AM. Reason: clarification
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

  2. #2
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    Howdy Dave,

    This is a great way of putting the acceptance of epilepsy. I would add on the following:

    Why are you afraid of me?
    Why the rejection what did I do wrong?

    I've become a stronger person and
    I can relate to others with medical problems better.

    I am I and I like being what I am and that's ME!

  3. #3
    Distinguished Community Member howdydave's Avatar
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    Howdy Sue!

    Did you ever take Latin?

    My quote from Popeye in my signature says:
    I am what I am and that's all that I am!

    More properly translated:
    I am what I am, whatsoever I am -- is.



    Quicumque latine dictum sit, altum viditur
    Whatever is said in Latin sounds profound
    Last edited by howdydave; 08-23-2011 at 09:04 PM.
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

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    Howdy Dave,
    No I never took latin. The last line that I wrote came from a poem I wrote yrs. ago and that's why it sounds so wierd. You have to read the entire poem to understand it.
    Thanks for you time. I wish you the best and May God Bless You!

    Sue

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    Distinguished Community Member lor's Avatar
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    Great you guys.

    Dave, Would you like to come over & have some spinach?
    Lorraine (lor)

  6. #6
    Distinguished Community Member howdydave's Avatar
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    Quote Originally Posted by lor View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Great you guys.

    Dave, Would you like to come over & have some spinach?
    Howdy Lor!

    Better make arrangements for that sorta' thing offline...

    You know how "frisky" Popeye gets when he eats his spinach! :ambivalence:

    Strong to the finach?

    Well! I never... :o
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

  7. #7

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    acceptance is a vital part of moving forward... but i get it, it takes time.

    i was in the woe is me, i am a freak stage for numerous years. those were some dark times. (spent many of those years on here, hence the name change!) when i finally accepted E was just a condition and not who i am, my perspective changed. i started to love myself for who i really am. everyone else seemed to follow suit. i don't think i'll ever be in the advocate stage or wear a t-shirt or do one of those running thingamagigs. but, i'm comfortable in my own skin and thats really all that matters in the end. :o

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    I think I play a bit of hopscotch with the steps, depending on how I am doing with my control and/or side effects at the time! :) 12 years after my official diagnosis...I have accepted it. Realized that it probably impacted my life more than I can ever know and deal with it as I go.

    It is not the first thing I tell people about myself. But when it comes up, I am blunt and honest about it. And you either like me for me (nothing has changed about this person you were talking to a minute ago, prior to the disclosure), or you can move on.

    I would like to have a better grip on the depression part though.

    Stace

  9. #9
    Distinguished Community Member howdydave's Avatar
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    Although it is only 3 little words in my list, the:

    Life goes on

    stage was where I started to really accept the fact.
    Last edited by howdydave; 08-30-2011 at 09:08 AM.
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

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    It was sometime hard to deal with depression that comes along with epilepsy but I took a look around me and I found other people who had things a lot worse in life than
    I ever did with my seizures. I had an Aunt who had MS and couldn't walk and was in a wheelchair having to depend on others. I've dealt with students in school who are
    down syndrome, come from broken homes and have severe emotional and some with mental disabilites and all of this woke me up and made me realize how lucky I am.
    So what if I blank out for a few seconds and feel a little tired all of that goes away after awhile and I feel fine. This is what has kept me going over the yrs. with epilepsy.
    Here's wishing you well and May God Bless You!

    Sue

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