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Thread: Finally, progessive activity on awareness of our reality and hope for change!!

  1. #1
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    Default Finally, progessive activity on awareness of our reality and hope for change!!

    I found an article on Truthout, a site I visit, re the editor who has epilepsy and has decided to make it known rather than continue to hide in the shadows. This video of the Institute of Medicine's (IOM) report re what we have known all along regarding the stigma and quality of life of those of us with epilepsy as it relates to how we are or are not accepted by the public, and what they would like to see happen was also on the site. I watched some of it but didn't have time to complete it. I surely will though. I'd like to be involved in this. This is very hopeful as long as the activity or efforts are not stolen or diverted by the EFA or the pharm co as either will stop the progress in a heartbeat. I think the IOM is strong enough to stand on it's own however. I hope. Tattoo
    Article by the editor with epilepsy

    IOM video and Report
    Last edited by Tattoo2; 02-12-2013 at 09:07 PM. Reason: spell checker needs glasses

  2. #2
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    Default Progress finally

    This is one comment to the article I posted. There are lots of great comments, but this one is by the son of a National Institute of Health (NIH) Epidemiologist. It mentions the effect Vitamen D3 has on preventing seizures. I know it is a big thing now to have vitamen D3 levels drawn and monitored, and the more north you are, the less your level seems to be due to a greater lack of sunlight. I take D every day. The docs I have worked with order a dose of 50,000 IUs of D3 a week for their patients. This is the comment with other links inside. Tattoo

    NIH Epidemiologist's Son dubinsky •

    And with regard to the heroic efforts of the emergency workers who have maybe lessened the consequences of the seizures, a deeper look into the performance of our medical infrastructure is worth mentioning here.

    First, it has been known for decades that there is a connection between epilepsy and vitamin D deficiency - Maya, did any of your doctors ever mention this? Would your insurance even have covered getting it tested five years ago? Look at this recent finding:

    "The most revealing result, however, occurred among the person whose vitamin D was a dangerously low 4 ng/ml at the start of the study. This person had 450 seizures in a three-month period, but after raising vitamin D level to 43.1 ng/ml, the seizures dropped to 30 in three months! The study did have some limitations, namely the small number of subjects and the lack of a placebo to compare to, but it still highlighted the importance of correcting vitamin D deficiency in epilepsy patients."

    You should be asking how is it that the drugs you were given in those incredibly expensive emergency treatment crises cost $500M apiece for approval, while a non-patentable cheap vitamin cannot be prescribed in place of 'real drugs' for fear of liability. Still not convinced? How about the effects of the drugs - here's a typical one:

    "The results suggest that the bone disease resulting from phenytoin [Dilantin, a drug long used to treat epilepsy] therapy may be associated with a deficiency of 25-hydroxycholecalciferol [vitamin d]"

    "The investigators concluded that it is essential that individuals that are on one of these seizure medications should have their B12 and folic acid levels checked. If their levels are found to be low, it is also important to supplement individuals. "

    God forbid that a person should just take a good multivitamin from the get-go while taking these drugs - no, have the levels checked first - wouldn't want to be taking dangerous vitamins, willy nilly and risk having your urine turn yellow.

    What we're looking at here is a tiny corner of a huge problem - the vast majority of our medical system is dominated by patent medicines - just like the 'snake oil' sold at carnivals a hundred years ago, that the FDA was supposed to put out of business - now the purveyors wear fancy suits and run some of the largest corporations, while the medical system is radically tilted to do their bidding. To put it into perspective, here is a notable voice on this subject:

    Marcia Angell MD is a well-known, respected physician, editor of NEJM :

    "It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of trusted physicians or authoritative medical guidelines. I take no pleasure in this conclusion, which I reached slowly and reluctantly over my two decades as an editor of The New England Journal of Medicine."

    In my opinion, this is the inevitable outcome of a system where that much regulatory power is concentrated in Washington - so much money is at stake that the pressure is overwhelming - it's gonna get bought. So the Universal Health Care that we now will have is essentially a guarantee that all of us will be entitled to be poisoned and to share the outrageous cost of treatment, while there is no public money to honestly evaluate natural therapies that would essentially put most of the pharmaceuticals out of business within a year. The good news is that the treatment of the vast majority of degenerative and chronic disease is far cheaper than we are all led to believe - it really doesn't cost a person the equivalent of a good house over a lifetime to get much better medical care than we have - it is a grand fraud, easily recognizable after even a little digging - and most Docs are chumps, along with the patients. Look at who funds the medical schools.

    Back to one vitamin: the further North you live, the greater the incidence of vitamin D deficiency - winter sun is too low in the sky to deliver UVB radiation necessary to produce vitamin D - even if you are willing to sunbath in the freezing cold. D deficiency is a major contributing factor to: most cancers, hypertension, autoimmune disease, diabetes, lipid imbalances, insulin resistance, and apparently epilepsy, as well. And this is only one vitamin.
    Last edited by Tattoo2; 02-13-2013 at 09:55 PM. Reason: To add the usable links

  3. #3
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    Oct 2006


    Hi Tattoo,
    Thanks for sharing all this great info. I really appreciate it. I found it very interesting. Wishing you only the best and May God Bless You!


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