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Thread: Please Help!! Desperate for relief from suffering - 24/7 eye and head pain

  1. #1

    Exclamation Please Help!! Desperate for relief from suffering - 24/7 eye and head pain

    my website:

    I am a pre-med student that has had to withdraw from college and almost all other activities because of the chronic pain I've endured over the last 3 years. The pain is unrelenting and has made my life sheer misery.

    The pain I experience is a non-stop, dull, aching soreness in my eyes and in my forehead. It is not throbbing. It is not sharp. It is not pulsating. It is a static, steady ache. When different specialists have asked me about my "headaches" I always respond that I don't have "headaches". Rather, I've had one long continuous headache that has lasted 3 years.

    I reside in Texas and I've traveled all over America to see many excellent physicians across the various specialties who have done careful evaluations. Unfortunately, despite all of these efforts, my diagnosis remains in doubt by many and none of the medical or surgical treatments have alleviated the pain I experience.

    my father is a physician who cares deeply for me and wants me to find peace from this suffering more than anything in the world. Out of desperation, he has generously offered a $50,000 dollar reward for information or diagnosis or referral leading to complete resolution of my pain so that I can resume my normal life and be free from suffering.

    I have a website that contains my full medical information, including imaging reports, pictures from my surgeries, and various medical articles we've pulled over the years.

    there is a lot of information on the website, but if you're willing to read through my medical history, you may have a better understanding of what I've gone through the past 3 years, what meds I've been prescribed, what surgeries I've undergone, etc

    here is the link:

    this is truly a "mystery diagnosis" and I'd be so very grateful for ANY kind of helpful suggestion, recommendation, or referral.

    I hope to God that there is an answer to my medical case and that I find that answer soon
    Last edited by Mike Weins; 01-05-2013 at 04:18 PM. Reason: Edited out personal email

  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Welcome to Braintalk! I'm so glad that you found us. We may not have the answer to your issue, but we will support you through this ordeal.

    I perused your website, and it certainly is thorough. I noticed that your symptoms began after you started taking Accutane. I looked up Accutane on our Drug Info link (at the top of each Braintalk page), and it looks like a pretty gnarly drug, with many potential side effects. Headache and blurred vision are listed as serious side effects. Here's the link to Accutane:

    You and your father likely already know about Accutane, but I just wanted to provide you with that information, because it seems like it correlates to your condition.

    I did a Google search for "Accutane long term side effects," and there are quite a few stories out there about disastrous side effects with this drug, some even latent; many refer to bone loss and osteoporosis, as well as immune deficiency. If you haven't scoured the internet to find others, who have suffered as a result of this drug, I recommend that you do so. You might find someone with your symptoms.

    I imagine that you've had extensive blood work to assess vitamin and mineral deficiencies, as well as hormonal balance (thyroid comes to mind).

    Have allergies been ruled out, including food allergies?

    Have you contacted Mayo Clinic? Johns Hopkins? Cleveland Clinic? Scripps?

    I'm so sorry that you are suffering and that you've been through so much to find a cause and relief. I pray that you will discover the answer very soon.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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