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Thread: Headaches -- getting worse, meds won't help

  1. #11
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    Hi Alesis,
    I'm sorry to hear that you had a headache and ear ache I can't help but wonder if the problem with your ear plugging up may be a cause for your headaches. I had this problem after I had brain surgery and my I had to see an ear specialist who
    used a strong pressure force water gun to get wax that was deep in my ear canal that I never noticed. My ear canal got really narrow after having brain surgery and I had a hard time cleaning my right ear without it getting plugged up.
    I sure hope I'm wrong but it sounds like you may be having absence (petit mal) seizures especially seeing that it happens 20-30 times a day. The only other thing that I can think of other than epilepsy is demetia. If alzheimers runs in your family
    this could also be what's happening to you, but I sure hope I'm wrong. Yes, headaches and seizures are related I started having migraine headaches and then the following yr.I started having seizures.
    I want you to start a gluten free diet and see if that helps you at all. Stay away from anything with nutra sweet (aspartame), MSG, and cut back on the carbs, starch foods and caffeine and let me know if this helps you at all. I wish you
    the best of luck and May God Bless You!
    Sue

  2. #12
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Alesis))))))

    Please see my response to you on the Epilepsy forum.

    Additionally, after reading that you aren't eating properly, I think you should factor that into your current symptoms. Lack of nutrition, malnutrition, lack of vitamins and minerals, all contribute to headaches, memory loss, and perhaps some of your other symptoms. I think the Topamax is suppressing your appetite, as it is used for weight loss for some patients (although I disagree with that use of the drug). With the lack of food in your system, the Topamax may also be building up in your system, causing you to have a toxic level.

    You are likely not receiving an adequate intake of important nutrients like potassium and sodium, as well as a sufficient amount of calories and protein. Your body and your brain need food!

    A simple blood draw would reveal your levels of these things and indicate any deficiencies.

    Are you well hydrated? Do you consume enough water throughout the day?

    Perhaps you could try eating smaller portions more frequently throughout the day/evening to help you increase your consumption. Or perhaps you could supplement with something like Ensure or Resource, or make your own protein/veggie smoothies.

    Ya need to eat girlfriend! Mama Sez ... ya need to eat!

    I guarantee that you'll feel better with proper nutrition. You are weak and woozy, partially, because you aren't eating properly. That may not be the entire explanation, but I will bet dollars to donuts that it's part of it. Been through this with both of my boys.

    Focus a bit more on your nutrition and water intake, and see if that helps you.

    Love & Light,

    Rose
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

  3. #13
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    Hello everyone:

    Thank you for taking the time to help! :-)

    I called the neurologist's office and the best they could do is put me on the cancellation list. Please pray that they call me with an appointment sooner rather than later.

    My last blood draw showed normal levels of all nutrients as well as thyroid, CBC, sugar, etc. I am supplementing several vitamins and minerals due to my body having used up its reserves after the July hysterectomy (kept one ovary). I have come a long way since then. Smoothies -- yes! There is a great little shop here in town that sells 100% natural, all fresh smoothies; I have them add antioxidants and they come with protein supplements mixed into them. No sugar or MSG added; they are very health-oriented and the smoothies taste wonderful. I had one today, in fact. :)

    In reference to the gluten free diet -- what is your reasoning behind that? Just curious. I was tested for celiac disease and it came up negative, in case you wondering. In fact, I had a whole allergy panel done and everything except one very specific mold came up negative. As far as diet goes, I don't consume aspartame, saccharine, Splenda (I forget the generic term), MSG, or much in the way of fatty or sugary foods. I mainly drink milk, smoothies, coffee (I have been cutting down) and some Sierra Mist Natural or Sprite, depending on what's available. The soda pop is not good and I should cut it out; I don't consume that much of it anyways.

    Lately, I have been eating Subway sandwiches with oven roasted chicken breast, on a toasted flatbread and load them up with veggies. For dressing, I keep it simple -- oil and vinegar. I'll eat part of it and take the rest home for later. Since I had gastric bypass in 2011, I can only eat a little bit at a time. I was hooked on Panera Bread for the longest time and enjoyed their all-natural chicken soups. I tend to get hooked on one thing and eat it every day until I get sick of it. That's just me -- once I get hooked, it's hard to break free. At least I get hooked on healthy things. My appetite since I got the headaches has dropped, however some days are better than others. I find I really need to eat what tastes good to me to break through the nausea.

    I answered this in the other post and I will post it here for the sake of continuity: When I called the pharmacist to ask him if my medicines were causing my symptoms, he said that, because I have been on them so long (several years) that the potential side effects would not be showing up now, nor be the cause of my problems. I remember specifically talking about the Topamax and he said even that pill, because I have been on it for so many years, is not likely to be the cause of my symptoms, however he added in that "the body can do strange things."

    As far as my ear goes, I wonder why the doctor could not see what was plugging it? Usually when my ears are plugged with wax or whatever, the doctor can look in and see it, and then treat it by using one of those high-pressure tools like you said. If it's large enough to affect my hearing (which it is) and to be felt, then why can it not be seen? Then again, it could be a sinus thing...perhaps I should see an ENT? I did have a 4.5 or 5.5 cm, benign tumour removed from the parotid (large salivary) gland, along with the gland itself back in '08...had a follow up CT scan in '09...ENT who did the surgery assured me that he got it all and that the surgery had nothing to do with my pain...now I wonder if I will get another scan (ordered by the neuro) because of the new symptoms...whatever it takes...I'm game. :-)
    Last edited by Alesis; 11-20-2012 at 06:02 PM.

  4. #14
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Alesis))))))

    Good for you for eating healthy foods! You will see that I heartily support that in my reply to your other post.

    Was the tumor on the same side as your plugged ear?

    "The body can do strange things." It sure can.

    Hope you get some answers.

    Love & Light,

    Rose
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

  5. #15
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    (((((((Earth Mother 2 Angels)))))))

    Yes, the tumor was on the same side as the plugged ear and the headaches.

    Thank you again for your help and insight. I tend to be highly analytical, trying to figure things out like I am solving a mystery. I read your other post and will hop over there to re-read it and reply shortly.

    Love and light to you, too. Have a blessed Thanksgiving tomorrow if it is indeed something you celebrate. :-) If not, then simply blessed be.

    A.

  6. #16
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    My prayers have been answered so far; a cancellation opened up and I got into the neurologist today. He seemed to think that based on my headaches coming and going when I change body position/turn my head left and right, as well as my "pretty good" neurological exam that it is muscular. However, because I have been having all the other symptoms to go along with the headaches, he ordered an MRI, which is scheduled for 18 Dec.

    I get the impression that doctors hope that it's something less serious and go from there. That has been my experience pretty much with all the doctors at this mega-clinic. However, I am ultra-thankful that he ordered that MRI and is willing to dig deeper.

    He also prescribed a medication to take at night (I forget the name) to _hopefully_ help with the headaches.

    A.
    L sided headaches since Fall 2005. Stopped in 2010, only to restart w/greater intensity in November 2012 with additional symptoms of nausea, clumsiness/balance issues, poor appetite, and difficulty hearing out "plugged" left ear. Headache pattern: occurs in AM and upon changes in body position. OTC meds do not help.

    Previous surgeries: 2008 total L Parotidectomy, secondary to benign tumor, 2011 gastric bypass, 2012 hysterectomy due to benign mass on ovary. (Kept 1 ovary)

  7. #17
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    I found out the name of the medication. It's gabapentin. I took it last night and it took the edge off a very slight bit. Of course, it will take time.
    L sided headaches since Fall 2005. Stopped in 2010, only to restart w/greater intensity in November 2012 with additional symptoms of nausea, clumsiness/balance issues, poor appetite, and difficulty hearing out "plugged" left ear. Headache pattern: occurs in AM and upon changes in body position. OTC meds do not help.

    Previous surgeries: 2008 total L Parotidectomy, secondary to benign tumor, 2011 gastric bypass, 2012 hysterectomy due to benign mass on ovary. (Kept 1 ovary)

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