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Thread: Long New York Times article on CCSVI

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    Distinguished Community Member agate's Avatar
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    Default Long New York Times article on CCSVI

    The New York Times (October 26) has a long article on CCSVI and MS. The readers' comments, posted at the end of the article, are interesting too:

    http://www.nytimes.com/2012/10/28/ma...y&_r=2&emc=tnt
    Last edited by agate; 10-28-2012 at 08:54 AM. Reason: fixing link
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Agate, I read the entire article. I am not sure what to think. I think some of us just want to believe so much that there might be something to help us that we begin to grasp onto things that are not yet proven. I found myself doing that while reading parts of the article. And I have done that about other things.

    We use to have a lady on here who had this procedure, but has not reported back about the results. I have not been reading any place else so I have not had any feedback.

    It is interesting, but I do hope that people weigh the possibility of the side affects that they mentioned. I don't know how often they occur.
    Virginia

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    Distinguished Community Member agate's Avatar
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    There were quite a few people on this board who've had this procedure but none of them has been heard from in quite a while. In fact, the article states that some 20,000 people have had this procedure done.

    I have to wonder about a procedure that is being so vigorously promoted. Maybe those who are enthusiastic about CCSVI are people who genuinely believe that they've found an answer for some MS problems and are eager to spread the good news to those who can benefit from it.

    I hope so. I hope that all those who've had the CCSVI procedure will have good results. I'm so reluctant to do anything risky that I probably won't be signing up for it soon.

    --And it's way beyond my means. What does someone do who really wants this procedure but can't afford it, I wonder? If it's genuinely beneficial, I hope it will soon become available for those who don't have the funds for it.

    I think I understand being willing to opt for anything that will help.
    Last edited by agate; 10-29-2012 at 09:08 AM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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