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Thread: How is everyone?

  1. #1
    Community Member tigerchef1969's Avatar
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    Question How is everyone?

    Hello everyone, I wanted to say thanks for all your prayers and thoughts I had an appointment with a new neuro yesterday for a second opinion on all that's going on with me. Something very strange happened though when he was checking my vision, he noticed and kind of snapped his fingers and said my name I said yes is there a problem? He said you were just having a seizure I was very taken aback by this cause these are not my regular focal partials! Furthermore, it happened one more time as well. I, equally important, received some not so excellent news because of all the meds my kidneys are showing signs that they are failing. Hope everyone here is great and talk to everyone soon Regards Jeff.

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    Distinguished Community Member howdydave's Avatar
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    Howdy Jeff!

    The best place to have a seizure is in front of your doctor!

    I just got back from having a Cardioversion this morning.

    I had atrial fibrolation (maybe due to the vagus nerve stimulator, maybe not.)
    The doctor zapped me twice with a defibrolator before he was satisfied with my heartbeat.
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

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    Hi Jeff,
    I had sz. after I had brain surgery and my Dr. told me it was do to the nerves healing. I hope and pray that this is what's going on with you. As far as your kidneys have you asked your Dr. if it's do to your sz. meds that's causing
    the problem. I've had kidney stones and kidney infection in the past and my Dr. changed my AED's and I drank a lot of fluids and within time I was fine. I know it's hard but try to keep a positive thought and remember I will be praying
    for you. If you want me to I will come and visit you. Here's wishing you well and May God Bless You!

    Sue

  4. #4
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    (((((Jeff))))))

    I'm so sorry to hear that you are having seizures. I don't know anything about brain surgery, so I just pray that all that you're enduring is part of the healing process, of the brain reprogramming itself.

    Have you been referred to a kidney specialist or advised on treatment for your kidneys?

    Sending you lots of healing energy and saying prayers for your complete recovery ~

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Hey Jeff,
    So good to have you back wth us here and to hear from you. What exactly did that doc see? I am not sure he could actually see a seizure since they are the result of misfiring brain cells (neurons), and he has not got that kind of access via the eyes. He/She can see Nystagmus which is the rapid back and forth movement of the eyes. I have had that and was not aware of it, but it is supposed to be related to medication side effects, toxicity etc. What exactly did he see and did you feel anything? Was this an epileptologist or a general neuro?
    After surgery I would expect there to be different ways of experiencing seizure activity even if tiny due the removal of the focus that was causing the ones you have before surgery provided they did that. The change in pathways that results from surgery should cause such a change. Lots of changes take place after surgery and it takes time. If you have changed your meds since surgery, that is another big change for your body to adjust to. Tattoo

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