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Thread: Fairness in Policymaking for our Families: Part 2

  1. #1
    Distinguished Community Member
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    Oct 2006
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    Default Fairness in Policymaking for our Families: Part 2

    Here is part 2 and the last one coming soon. Let me know what you think - what has worked in the way of supports (any... community, organized funded supports, etc) and of course, what hasn't worked. Thanks!
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
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  2. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    The RDSP and PLAN are stunning examples of thinking outside of the box in serving folks with disabling conditions.

    In the U.S., I can only envision similar plans possibly working at a state level, rather than federal, and then it would be at the discretion of each state to implement their own version of the plans. That lends itself to inconsistencies in programs, which we already see in most programs serving disabled persons.

    In a country where we don't even have universal health care for all of our citizens, it is highly unlikely that the federal government would foster plans like RDSP and PLAN.

    As I mentioned before, our state has been evaluating the Self Determination program for decades, and we're still bogged down with a heavy bureaucratic machine gobbling up our tax dollars.

    These programs make too much sense. They are too cost effective. That's why we will never have them here.

    I've become cynical from an excess of reality.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

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