I am in Austin, TX and am trying to find a doctor in the area (or anywhere in Texas) that is an expert in the area of low pressure headaches and CSF leaks. I battled migraines for years, but 8 months ago they turned into a constant pressure headache that never goes away and does not resemble a migraine. Migraine preventatives and abortives do not help the headache. I visited a headache clinic where I had many IV influsions for headaches, none of which helped. I have a lot of other strange symptoms with this headache including chest pain, ear pressure, ringing, and whooshing, and fever, tingling in one hand, neck pain, floaters in my vision, and others. I often have a burning sensation which runs from my neck to my forehead.
I just had a lumbar puncture which showed that I had a pressure of a 2, which was extremely low according to the doctor doing the procedure. However, my headaches are not positional...I don't really feel better when I lay down. My MRI is also normal and doesn't show any sagging or enhancement of any kind. However, I also have been getting a strange taste in my mouth for over a year whenever I bend my head forward and am wondering if this could be a leak. My current neurologist does not think that my low spinal fluid pressure could be causing my headaches, but she also does not seem like an expert on the subject. She literally had to pull out books and read up on the subject during our office visit. So before I rule out the extremely low SF pressure as the cause of my headaches, I would like to consult someone that knows what they are talking about.
Does anyone know of any doctors in my area? Does anyone have any insight on whether this could be a leak or low pressure headaches? Or is there no way that the low pressure could be my problem because my headache are not postional?
I just had a lumbar puncture which showed that I had a pressure of a 2, which was extremely low according to the doctor doing the procedure. However, my headaches are not positional...I don't really feel better when I lay down. My MRI is also normal and doesn't show any sagging or enhancement of any kind. However, I also have been getting a strange taste in my mouth for over a year whenever I bend my head forward and am wondering if this could be a leak. My current neurologist does not think that my low spinal fluid pressure could be causing my headaches, but she also does not seem like an expert on the subject. She literally had to pull out books and read up on the subject during our office visit. So before I rule out the extremely low SF pressure as the cause of my headaches, I would like to consult someone that knows what they are talking about.
Does anyone know of any doctors in my area? Does anyone have any insight on whether this could be a leak or low pressure headaches? Or is there no way that the low pressure could be my problem because my headache are not postional?
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