Kathleen's update
ihaven't posted an update in a while. We had a great vacation. Kathleen di pretty well I took her off her bowl inducing meds and gave ehr her pain meds on a regular basis so she felt pretty good till we got home and she hadn't gone in days. Her GI Dr. had taken her off of the Amitiza because it was making her diarhea and pain worse. Then he put her back on it only half the dose and no more Miralax or Dulcolax. So far after a week she's doing ok, we'll just wait and see what happens and if she's going enough not to get backed up. He also seems to thnk that her pain is not just from the motility issue and constipation. This may be making it worse and triggering it more but he seems to think it's the damaged nerves constantly "firing pain signals". We'll consult again in another week and see what the Amitiza is doing and what we will do about the pain. I'm hoping that we can even make an appointment to go in and sit down and tlak with him one more time about everything. I need to make a list of questions for her longterm outlook and med use. It's been such a long time working this out I hope we can get her feeling 100% by the time school starts... is that too much to ask??? I don't think so...
She's really enjoying not having to get to school in the morning. she's also LOVING her Ipad! The school bought ehr one to use and we have been using it over the summer. In fact I'm going to bring it in and ahve them install more Apps to keep ehr busy. It's an awesome tool for her.
Mary Grace
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