I havent' posted in awhile but just got some weird news today and was hoping this wonderful community might have some experience with my issue. I was diagnosised in 2005 with a Colloid Cyst which at the time was very sympotmatic even though only 7mm. I went to Mayo, they told me to chill out and just wait and see...sooo 7 years later many of them headache free mostly....the cyst is still only 8 mm no big deal. I had my yearly follow up in Jan of this year, never heard back from anyone so assumed it was still stable and forgot about it. Well, I started having symptoms again a few onths ago which have intensified and after 2 full weeks of an unrelenting migraine decided to go pick up the report and look at it myself. I was shocked to read that the colloid has recently moved into the left formen of monroe and has caused about 5mm of widening there since the last MRI less than a year earlier. Additionally, and this is kicker...I now have 1cm Pineal cyst too! This pineal cyst was not there AT ALL in Nov of 2010, had the MRI in Jan of this year and ta-da a whole new (and rather larger) cyst. So, I was wondering, does anyone else have a colloid and also a pineal cyst? I feel very special to have 2 cysts but um, come on man, give me a break right?
The reason I ask, is because I have been having terrible headaches and some vision changes lately. I had a spinal epidural done on my lower back due to horrible back and leg pain and numbness just 3 weeks ago after 6 months of back pain and leg weirdness. And now I have been battling a recurring or nonstop (depends on how you look at it) headache for 2 weeks straight. I've been through a dozen migraine pills, 2 bottles of nausea medicine, and a ton of pain meds. And yet, I feel worse, I can't sleep because the headache are much worse when I lay down (Colloid symptom) are always worse in the morning (Colloid symptom) and always in the back of my head (Collloid symptom). I know these to be colloid symptoms because my surgeon has told me they are, and that specific headaches like these are indicative of symptomatic Colloid cysts, regardless of size. But I know nothing of a pineal cyst, does anyone know if there are any symptoms for these cysts?
Ugh, who even knows if any of this is related, my wonderful neurosurgeon is out of the country (seriously~ what timing I have!) and I am a little freaked out that I have 2 things growing in my head.
Any thoughts and expierence greatlty appreciated!!!