I had my meeting with the school on monday the 4th....it went great! They wanted to discuss the alternate code status (DNR) form we have for Caitlin and to formulate an official district policy for following them. I (as usual) was right on the dot in getting there...everyone was there already. The director of spec-ed began the mtg and said he hoped I didn't mind that they had 2 lawyers present...I didn't mind at all and actually I knew one of them already! Small world! My friend used to do day care for the one lawyer's children and she (lawyer) also graduated high school with my sister (although they didn't hang out in the same crowd). So that did not intimidate me at all as I felt comfortable with a familiar face. The other lawyer represented the state of wisconsin department of education or something like that. The only other person I did not already know was the school nurse from the middle school, Caitlin will be at elementary for one more year but it was nice to meet her as when C moves up, I'm sure we'll get to know each other fast! LOL! The state lawyer guided the meeting, asking questions, etc. I brought my copy of our form so they made copies for everyone there. State lawyer had many good points, the biggest issue is at what point does custody transfer from school to me...ie, when Caitlin is at school, school is required to protect life. (I figured that and it didn't surprise me) If she were to have a major medical something happen, we determined a procedure to follow where I would be called and when I arrived at the scene, then I would be in control and our form would then be honored, unless ambulance arrives first. Ambulance would also be allowed to honor our form and in fact, state lawyer suggested having a copy of our form on file with the local ambulance dept and also the hospital. I had never thought of that so that was nice. Her ped has a copy as well as the children's hospital but not our local one...better safe and prepared! They were all concerned about my feelings, I said, I am all good...I like knowing all these things are taken care of ahead of time and not during a crisis. Which is why we have the form in the first place! :) State lawyer also discussed at what point would I keep Caitlin home from school....like if she were medically not stable, it would be better to keep her home so that I would have control/custody in case the form would need implementing. Which really is not applicable now, I am currently not fearing such in instance, but I did talk about 2009 when her shunt was failing and how I did keep her home when I felt she was not right. I am good about that though I am sure they need to write it in a way for people who might not be as good about it (does that make sense?).
So that was that! :) It's been a busy few weeks, my kids were done with school the end of may and had a week off before summer school started this week. Hard to keep them all busy and not fighting with each other. Plus I had a rummage sale this past saturday (did great!) and the day after that we had a family party for Tyler's 7th bday. Caitlin starts ESY (extended school year) next week, she got an extra week off as ESY is only 5 weeks so they tried to even out the breaks (a 2wk session, break then 3 wks session). Caitlin is doing ok...not great but could be worse. She is scheduled for long term monitoring in july. I hope they can figure out what is going on in her head. We are hoping to pinpoint if there is one spot or not that the seizures are coming from. I am in favor of surgery, the drugs are not doing it for her. She has been on 6 different ones already and we have almost maxed out now on topamax. (she also takes depakote). Well, getting late here and I have once again avoided working on the katie beckett forms...another thing on my to-do list. Have to get those in by the end of the month but I keep procrastinating...I hate filling that form out every year, it's depressing. I wish I could just write "no change". It is the same revision as last year (so nice that they have the rev date in the corner) so at least I can just copy what I put last year but still. I'm sure y'all can relate.