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Thread: Having Bad Muscle Spasms - any input?

  1. #1
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    Default Having Bad Muscle Spasms - any input?

    I have started having really bad muscle spasms in thighs and hips and down upper part of left leg. This morning it was 11:15 before I got up. I had hurt so much from about 6 on. I do Yoga and deep knee bends. I also take calcium and magnesium and vitamin D3 at night. Wonder why this has started? It is really bad. The spasms are deep and unrelenting. I also seem to ache in those areas along with it. I don't know if the spasms are so bad that they cause me to ache or what is going on.

    If I go to see my Neurologist he would just want to put me on Baclofen and I do not want that. It seems that everyone who goes on it has to keep upping the dosage and it seems to carry a lot of weight gain. All this would depress me.

    Anyone have any ideas?
    Virginia

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    Distinguished Community Member SalpalSally's Avatar
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    So sorry Virginia, how's the weather? It's rainy and yucky here in SWOhio and I'm a bit spasmy myself. Stretch and rest is what is best, IMHO!!

    Feel better soon..:o





    ..
    Last edited by SalpalSally; 01-11-2012 at 11:15 AM.
    Love, Sally


    "The best way out is always through". Robert Frost







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    Distinguished Community Member Cherie's Avatar
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    My spasticity is worse when weather is bad and also when myt B12 levels are low. That's correctable and the weather changes. Spasticity is also tremendously helped by stretching for me.

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    I have never had any weight gain with Baclofen. And once I adjusted to it I wasnt bothered by the fatigue. Unlike the Zanaflex. I do keep some Valium around if it becomes intolerable so far I have taken 1 & 1/2 pills in the last 12 months.

    I agree with the others if I let it get out of control, and with the chronic MS pain I have it does happen, I don't do any type of exercise or walking around it will get to the point that I cant get out of bed on my own power.
    Last edited by Gary; 01-11-2012 at 12:42 PM.

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    I do yoga and deep knee bends and did them yesterday and the two days before, but I have decided that I will skip today to see what happens.

    It is rainy and yucky here today also, but this is different from what I have been experiencing with the weather. I definitely can tell a difference in my MS with weather changes, but I have been doing that for so long that I know what it is. This is VERY different. It is extremely deep pain. I don't know any other way to describe it. I was alright, or at least as usual, yesterday. This happened overnight.

    Virginia
    Virginia

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    Oh, Virginia, so sorry that you are hurting w this. Would heat help relax this? You'd have to do a large heating pad one hip at a time for about 20" at a time. Only on skin that has feeling.

    Re: baclofen, I was recently Rx'd this and have no idea what to do w it as I do not have spasms. The stand in neuro (real specialist is on sabbatical) saw a quick involuntary movement and said it was a spasm. I researched the drug and though I read that after you reach the optimal dose for you, you do not have to keep raising the dose or take drug holidays?????

    Don't put up w the pain. No upside to that.
    ANN
    Last edited by stillstANNding; 01-12-2012 at 08:40 AM.
    There comes a time when silence is betrayal.- MLK

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    Actually, my Neuro did not suggest baclofen. I was wrong. He gave me a prescription for Neurontin over a year ago. I got it filled, but was afraid of it and also I had not felt I needed it. So he gave it for the nerve pain that I have I guess and not the muscle spasms. I do have nerve pain, and have had some pretty bad episodes, but the last couple have been in the muscles. Guess I will have to wait and see what he says. I am not due to see him until March.

    Gary, maybe this is the reason you have not had any weight gain. I was thinking of the wrong medication.
    Virginia

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    Distinguished Community Member agate's Avatar
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    Hi Virginia,
    Just this evening on the NBC national news there was a segment about how yoga can actually do harm:

    http://www.msnbc.msn.com/id/3032619/#45964780

    It's at the very end of the broadcast.

    One yoga instructor interviewed on the program says that "the vast majority of people should give up yoga altogether."

    I'm not opposed to yoga myself but when I tried a couple of yoga DVDs I noticed how I couldn't do many of the positions, and they seemed very difficult even for an average person with normal mobility.

    I was having bad muscle spasms a few years ago, and my doctor sent me to physical therapy. That fixed the problem for me--but I do have to keep up with the regular exercise program I learned in PT.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Default Have CP and bad hip spasms

    I have spastic Cerebral Palsy and have almost the exact same problem. It gets to be a HUGE PAIN IN THE BUTT in winter because the cold makes muscles contract. I can do things in summer that are almost impossible in winter. It drives me up the freakin' wall like no tomorrow sometimes. My mom even suggested a move to Florida so it doesn't effect me so much. Anyway you are doing the exact right things to help. I take B vitamans and something called "Calmax" which has the same things you take in it. "Calmax" is super absorbable. Google it and see if you can get it. It might work better than what you are taking. Do a lot of stretching. The pain might be due to the spasms messing up your alignment. I am very aware of my alignment now and I get almost no pain anymore. Just the spasms themselves which still make my body do things that make me look stupid like falling or dropping things a lot. Looking stupid is a lot better than being in pain.
    Last edited by funnylegs4; 01-12-2012 at 03:54 PM.

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    Agate, I did watch the video of the news. A little disturbing although I do not do the kind of Yoga that a lot of them were doing. I do a gentle kind that is stretching and supposedly strengthening. I am pretty careful about what I do now because I know that any little mishap could end up being a disaster for me at this point. What the average person could get over, I cannot. It has started me thinking and I wouldn't mind having something else to replace it, but I don't know what it would be. My Neuro sent me to a PT one time for something else and I asked her about MS and she said they didn't do much with it there. I have wondered about getting bands and trying to use those, but again I think one needs to know what they are doing before starting. I am going to ask my Neuro again when I see him, but that is not until March. Thanks for the link to this video.

    Funnylegs I will look up Calmax and see what I can find out. I considered the cold, but I had been under heavy cover (and it really was not that cold) all night so my body was not cold. My alignment is something I need to work on because I do not sit the way I should in front of the computer and in most places as far as that goes. I suppose you mean you just try to sit right and stand correctly, etc. I start out trying and then forget to continue to do it. I will keep the stretching going. I don't know how you can have spasms and not have pain. This was just really a deep pain. Thanks for the input.

    Virginia
    Virginia

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