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Thread: Party room- a place for fun, pity, commiserating, or any other thing you come up with

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  1. #1
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    Cool Party room- a place for fun, pity, commiserating, or any other thing you come up with

    It took me a long time to get back on this site so I hope others find their way back soon. Our son leaves in two days for college and then we will have an empty nest. My doctor reduced my testosterone injections to once a month but I am really having a big reduction in energy so I think a blood test is coming up to see where my levels are now. I hate having lost days every other day or maybe two days between.
    Hurry back everyone, I hope everyone is doing well.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

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  3. #2
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    Hi Mark
    Just popped on here quickly. Heading to sleep. Been on vacation in florida for the last 2 weeks...being way too lazy for my liking...lol Have one more week here. Tried BT a few times but we were down. Missed you all.

    How are you holding up? Definetly need some bloodwork done!! Make sure tne dr does it. How is Tyrell doing? Is he excited? Are you and Penny feeling sad?

    I missed several weeks on here so update me on whats been going on. I will try to check in more, typing on touchpads stink!!!

    Things are ok....kids are well. Been dealing with too much arm stuff. Been having pins and needles on top left forearm and thimb. Now its spread to pointer finger, thumb, forearm and also upper arm. Its truly annoying and comes and goes throughout the day. No rhym or reason that i can find. Neuro said at last visit it was from carpel tunnel. Thats when it eas just the top of forearm and thumb. I doubt tbats it but what the hell do I know? Whatever it is, it is spreading & not all that comfy...so much fun!!! I dont think i want to be a spiney anymore....can someone tell me where this bus stops???? GGRRR!!!

    Ok enough blubbering...i need some sleep. Very happy to see BT again. Night all!!
    ~*~*~*~*~*~
    Brigitte


  4. #3
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    Brigitte, good to see you made over on the other side and made it back to the room. Sorry to hear that your arms are causing you more trouble. I had the problem last year and a NS said carpal tunnel but I knew it wasn't that as I haven't done anything to cause it while my cervical spine has enough going on to cause the symptoms. Stick to your guns as you know more than you think and certainly know your body better than the doctor.

    Tyrel is ready to get out on his own although he hasn't gotten packed yet despite leaving early Friday morning. Penny is sad but I just view it as part of growing up. Tyrel and I have a relationship that will cover the miles and it will be nice to have an empty nest. It will be nice to get the house in shape the way Penny and I want.

    Not much else going on as the site was down for about a week and it took me that long to get registered once again. Enjoy the rest of your vacation as you will have plenty of time to get busy once you come back home.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  5. #4
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    I thought I would stop in and see if we had anyone new stop by but I guess it will be a slow process. We are working on getting my son packed for leaving tomorrow morning. Thankfully he is like his dad that he doesn't need much to be happy so there isn't a lot to do. I did get him a new spare tire and emergency kit for the trips back and forth. Penny has taken the day off to be around on his last day at home. We are just finishing up his laundry and then he needs to finish packing his clothes.

    I just dozed a couple times last night so I am running on low today. I wish I could take a nap but I can't calm down enough to drop off to sleep, maybe later. Time to get back to the packing and checking the list off.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  6. #5
    Community Member marijo's Avatar
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    Hi Brigitte, I completely understand and sympathise. I had disc replacement nine months ago. I have now had three big spine surgeries, and not really got much better. I wake up every night lots of times with numb hands. My left arm is really painful, elbow, shoulder, pins and needles etc, and numbness. Its a real pain. I've already had carpel tunnel stuff done. I've now given up on surgery as I've just about had it all, and am still a bit of a mess. HOWEVER, my big decision was not to let it ruin my life. There is a lot I can not do any more, which is sad, because my four children and husband are all very outdoorsy. But I do get on with stuff, and I do enjoy and make the most of my life. Also my husband has come to terms more with the way I am, which has made a great big difference.
    By the way your children look absolutely adorable. How old are they. My four are all grown up now, and I have two gorgeous little granddaughters, but unfortunately my son and his partner have recently parted as she found someone else to light her life.
    Take care.
    Mary.
    cardiac ablation 1997. prolapsed disc 1992. L5S1 fusion 2003 (failed, bad screw in spinal canal) Lumpectomy 2005, Carpel tunnel bilateral 2005.Prolapses bowel, bladder, uterus, V. Vault rectocele,repaired.2005. Sacral implant failed 2006. further prolapsed bowel. Subsequent ileostomy, removal of colon, rectum,. 2009. removal of bad screw, more metal work L4/5/S1 to stabilise.2010 cervical ADR 2 levels. Hypothyroid. retired 2003, further cervical stenosis problems. on pension& disability

  7. #6
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    Mary, I understand getting of the surgical merry-go-round as I made the same decision back in 2000. Short of avoiding paralysis I won't go with another surgery. It is good to hear that your husband has come to accept your condition more than he did early on. It is too bad you can't always go with him and the family when they do their outdoor activities.

    Kat, glad you had such a good time with your daughter and the girls. I hope you get the energy you want so you can do the work that you want to get done. At least your hawk has still claimed your area as his and I hope he does come back for you. I know our ducks came back to our pond the next year much to our surprise.

    I stayed awake all day after not a lot of sleep last night but it was a drowsy day. I worked on get more of my stuff in the chop area. I am working on a rack to store my wood so it is easy to access and to see what I have available. Penny and I had Chinese carry out for dinner tonight. We wanted Emery and Darrin over for dinner but found out Megan wasn't at work due to the flu so we decided they should stay away for now. I hope we all get some sleep tonight.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  8. #7

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    Brigitte, I realize it's been 6 years since you posted about your arm pain, but...were you able to identify and resolve the problem? Your symptoms sound identical to mine when my C6-7 went symptomatic on me. I wound up with a 2-level artificial disc replacement that totally resolved the problems. We already knew C5-6 needed to be replaced and I had a bit of a go round with the surgeon over C6-7 because it looked fine in the MRI. I told him I trusted what my body was telling me over the technology. He insisted on a discogram before he would do 6-7. I had sworn I would never undergo another discogram in this lifetime but gave in. Turned out it was nearly painless because 6-7 was so shot it wouldn't pressurize and the dye simply ran out! He didn't even have the needle out before he said, "We're doing a two level"! I think he learned a lesson that day. I hope your problem is resolved, as well, and you are doing well. Being a Spiny isn't much fun, that's for sure. I was very active here back around 2000-2005 as Rockhound. Still have spine problems but priorities kind of changed after my husband had a serious motorcycle accident.
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  9. #8
    Distinguished Community Member Jo6's Avatar
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    Dear Rose, you helped bring me from the depths of despair many times and I will forever be thankful to you. I'm glad you mentioned your Jon. I wanted to ask but was afraid to bring up old scares. I admire you greatly and thank you for your part in keeping this site going. I still have hope. Thanks to all that has worked hard to keep things going when some of us wasn't able to come. I can assure you that I was not at FaceBook!!Maybe it has its place but my place isn't there. I love you all, Jo6
    Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
    'cause you are the wind beneath my wings

    for my brother Ben

  10. #9
    Distinguished Community Member puddykat's Avatar
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    Hello everyone,

    Brigitte, sounds like you had a heavenly vacation; good for you hon. Also noticed in replying here all messages aren't included below like before, unless I pressed wrong 'reply'.........can't get my 'faces' to work either. All pages from BT come up w/errors on page. Take some fine tuning yet maybe.

    Glad things going well for you too Mark. Two person house coming up very soon. Our temps have cooled off, hope they have for everyone else. Haven't seen the hawk for a few weeks, heard but not seen. It's growing up, not a baby anymore.

    Hope everyone is well, stays well, gets well....talk again soon now that I've found home again.........geez, can't get smilies to work, nor does the 'more' work.......miss those little critters<G>LOL love to all, kat :)
    TMJ/shoulder/parotid tumor surgery, Scoliosis, Lumbar fusion for Spondylolithesis; now in entire spine. Herniated cervical disc, no surgery, high risk/Vascular Dementia (VaD), Breast Cancer survivor 12 yrs, Fibromyalgia, Osteoarthritis. Rapid transit small bowel/no weight gain, IBS, 'cusp'/Crohns; Diviculosis; myoclonic dystonia. VaD, my 8th yr, causes tia's, seizures, strokes, Parkinson's, Lewy Body Dementia

  11. #10
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    Kat it is good to see you found your way back. We just need a few more to find their way here and it will feel like home again. Are you excited about the start of football season? I have already started watching the preseason games. You got the smiley face working and it will just take some time to adjust to the changes but many of the things are the same.

    Tonight is our first night as empty nesters. Both of us are having a bad night as our sleep has been messed up. I really want to get back on a schedule again. Tyrel is set up in his room and spending his first night at college. He needs to find a couple of friends and start enjoying college life. Right now he has a room to himself but he is assigned a roommate but he hasn't shown up yet. It will really feel different around here as I will have the house alone to myself until Penny comes home. I will be spending the next week getting my wood shop set up. I have some limits because the kids stuff is still here until they finally close on their house. I will be able to get my tools in the room and get most of it set up. Sleep well everyone and I hope to be asleep soon.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

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