Just a few words for Parsi and others who drop in now and then:
Please don't be concerned if you don't think you have anything meaningful to say. Some of us are checking in here, keeping the place afloat and talking about our daily activities. Propping up the place maybe?
Sometimes just how to do a routine cleaning job can be baffling and we welcome suggestions.
For instance, the former member I mentioned who might join (but hasn't yet so far as I know) was concerned about how to clean the base of a toilet with mobility limitations.
That's a problem I have as well. How DO people manage it? I keep putting this task off by telling myself it looks clean enough to get by for a while longer.
There's the problem of having to be on my knees just to do the job. Kneeling pad needed. And having to have the supplies where I can reach them--rag or sponge plus whatever I'm going to spray on the area.
Then there's the problem of how to see where it's kind of dark. Sometimes a flashlight seems needed.
And how to reach around the parts involved.
Once I get down there and am all primed, I can usually manage it. It's just a motivation problem for me, maybe. But some people can't do this task at all without some special gadgets to assist. Guess I'm lucky in just needing the kneeling pad but that is essential.
I have to do the job quickly or else I'll have more trouble getting up off the floor. If I spend too long on my knees, I'm in trouble for a couple of days.
See how I prattled on?
Or we go on about what we're cooking and/or eating. Or what errands we've been doing. Or even what we're looking at out our windows. We're mentioning our exercise routines, what books we've read, and recipes we like.
This place seems to have evolved from a place where people newly diagnosed with MS or people who might have MS came for information to a place where people who've had MS for a fairly long time are trying to get along with it, work around it, just keep on keeping on.
And I should add that people who care enough about this board even though they don't have MS are also welcome here. We need friends.
--Others may have different ideas about reasons for being here. But this is my take on it.