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Thread: Useful Websites for Stiff Person Syndrome

  1. #1
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    Default Useful Websites for Stiff Person Syndrome

    A very comprehensive and thoughtful website that covers so many aspects of SPS is:
    http://www.thetinman.org/

    This was put together by a person with SPS who clearly has some type of scientific background. It also has research footnotes if you want to explore further some of her topics.

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  3. #2
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    https://rarediseases.org/rare-diseas...rson-syndrome/

    This is a compendium of Rare diseases. SPS is on it and has useful information.

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  5. #3
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    This is another website about SPS, and it is from NIH. It is a great place to explore even if you know a lot about SPS already. Its also helpful to give to your docs who know nothing about SPS
    https://rarediseases.info.nih.gov/di...erson-syndrome

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  7. #4
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    A great essay on invisible illness, from someone who has SPS

    https://patientworthy.com/2020/01/29...rson-syndrome/

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