((((((Hugs to All)))))) ~
funnylegs4 ~
I'm happy to hear that your relative is doing well now.
There you go ~ you proved my point that your experience informed your response to your relative's emergency. Every experience is a life lesson.
RE: Genetic testing ~ Jonathan and Michael were each in the hospital 9 times with pneumonia before they turned 2 years old. That is where my premise that my ancestors' children (and my former spouse's ancestors' children) would have perished, before developmental or neurological issues were apparent. Jon was diagnosed at 9 months; Michael was diagnosed at 6 months, because of Jonathan. Our pediatrician said, "It's probably a double recessive gene."
A few years later, working on my degree, I chose a Genetics class to learn more about the science to help my children. I was surrounded by pre-med students, and my professor was very patient with me. I told him why I was taking the class, for my children, and he moved mountains to help me pass the class with a C+. He graded on a curve, and he apologized to me and praised me for my dedication to learning about genetics. That grade was like an A+ to me. It's value to me throughout the rest of Jonathan's and Michael's Earthly lives is immense.
Donna ~
You and I have been traveling this path together for 20 years now. We certainly have been through a lot together.
I am happy to hear that Nick has found a suitable replacement for his caregiver. I will pray that everything works out with her for Nick.
Thank you for sharing your art gallery experience. Experiencing all of that in person, I am sure, was inspiring and invigorating. I haven't been to an art gallery or museum for over 30 years. Actually, other than the hospital and grocery store, I haven't been anywhere for 15 or more years. I live vicariously!
If you need any help with your PTSD project, let me know. I have PTSD from many different experiences in addition to caring for and losing Jonathan and Michael, as well as Jim. I think most of us here on CN have a ton of PTSD experiences. How do we cope with it and keep going?
What a great project about COVID's impact on people with disabilities. Now, more than ever, our disabled community needs extra support. I'll be interested to read your project report.
Some time ago, you recommended the Netflix documentary, "Crip Camp." I finally watched it this weekend. Amazing. Of course, I lived through that era, but Jon and Michael were babies/toddlers during those years. There really was a revolution in our nation by people with disabilities. We participated in it fully. Along with other parents of children with DD, I advocated for PL-94-142, which became IDEA, ensuring appropriate free education in the least restrictive environment, Title 504, the ADA, the Olmstead Act, which closed institutions and reintegrated people into the community. I knew many folks, who lived at the local Independent Living Center from marches and meetings. It was deja vu for me to watch this great documentary.
Also, it was produced by Barack and Michelle Obama, which doesn't surprise me. I've watched a couple of their Netflix productions, and like "Crip Camp," they focus on the human condition and our role as a society to improve it.
While it is cold and snowy for you, it is 85 degrees here today and stunningly beautiful. Unfortunately, COVID cases are increasing rapidly here, so we're locking down again. Not enough, if you ask me.
John's daughter started school at school a week or so ago, 2 days a week, 3 hours a day. This is just ridiculous to me. In the middle of Fall/Winter, they reopen the school, which is traditionally flu season anyway? Do they think that kids can't give/get COVID, if they only go for 2 days and 6 hours? What is the point of this? By now, all of these teens should know how to do distance learning. They aren't socially isolated, because they are constantly on their phones, texting, zooming, talking. They meet in small groups with masks on and hang out. John's daughter and her friends are 18. Adults. They can handle not being physically in a classroom. They're on line all of the time anyway!
So, now, I'm afraid to be with John. He's already at risk with his job. Now, his daughter is in school. Right before the holidays.
I wish the Governor would just issue a mandate: Masks, and everything that isn't vital to our communities is closed. We are never going to get a handle on this if hair salons open for a little while, then shut down because COVID cases increased. Of course they did! We opened up too much too soon.
I don't need Dr. Fauci to tell me how gruesome and virulent this virus is. I just watch the news and see the cases rising, bodies being placed in refrigerated truck trailers, and I watch interviews with people, who have had it, and what they went through and continue to go through after it is "over." It's common sense. We have to be locked down to get this under some kind of control, and everybody has to agree to it.
COVID is the 100 year plague (Spanish flu), and we all need to take it seriously.
Okay ... sorry ... just very stressed these days.
Meanwhile, I try to find the positive in each day, some humor, some music, some inspiration.
Thank you, Donna, funnylegs4, and all of our wonderful friends here for your love, prayers and support, which I return to you and your loved ones ten-fold.
Blessings to all ~ be safe and well ~
Love & Light,
Rose
*Virtual Hugs Are Germ-Free! 