Page 1 of 2 12 LastLast
Results 1 to 10 of 14

Thread: What I am up against: Still standing?

  1. #1
    Distinguished Community Member
    Join Date
    Apr 2020
    Posts
    103

    Default What I am up against: Still standing?

    Nausea has been intense for about 10 days, no vomit, waves throughout the day. Today was the worst. Shovel food in as can. Am on Protonix 2x day for months, zofran 4x day for months. GI doc added oTC Gaviscon extra strength.

    This week will do a stomach X-ray and a gastric andmotility exam. I guess looking for Gastroparesis or other causes of this. This is really awful. Makes the other pain seem small.

    Will start an anti anxiety med to deal with too much on the plate with this problem, COVID bad issues, and worse. I dont know how things can go from bad to worse,but they do. Things really do fall apart.

    Have been able to pretty much keep weight on by shoveling calories in, but there are days I cant eat enough.

    I seem to remember ANN dealing with Gastroparesis like illness.

    ANd it mysteriously receded but. I cannot recall how that came to be?


  2. #2
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    6,248

    Default

    Oh Sunshine, I don't know what to say. There is nothing worse for me than nausea, and to have it last for so long is really bad. When you say you are dealing with COVID issues I hope you or someone in your family is not suspected of having contracted it.

    Ann did deal with some symptoms that were like Gastroparesis, but she could not get food down as I recall. She will be along to tell you about it. She did not have it. I have someone I know who does have it and they have lost a lot of weight, but they also have other problems. However, they have an appetite and eat what they can.

    I am so concerned about you and wish there was something we could do to help you. I am having anxiety regarding COVID and cannot focus to read my books, but I do not have the other things you do.

    Knowing you Sunshine, I am sure you have checked out all your medications to see which ones, if any can cause nausea. I hope your Doctors are being very responsive to your needs right now and realize you have been suffering so much for so long. You just have too much going on in your body and probably one thing leads to another.

    You have fought long and hard and I have no doubt that you will continue to do so. Maybe they will get to the bottom of this latest and newest development and help you to feel better. I am praying that will happen soon. You are strong and remember there are so many people who care about you. We miss you on the forum when you are unable to come on. We understand, but still we miss you.
    Virginia


  3. #3
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    4,296

    Default

    Hi Sunshine, so sorry to hear that you are miserable with nausea. I hope the testing leads to help for you.

    You are right about me having trouble eating enough. I could only eat a small (literally a cat sized bowl) every four to six hours. I did have an appetite and did not have nausea. I could not keep up with the weight loss.

    My gastroparesis test was probably normal but I couldn’t eat all of the prescribed food.

    I did not have pain but discomfort in the left upper quadrant within minutes of eating. I never got any diagnosis but my liver functions were 3 times normal.

    I hope you get a break as you have been suffering so long.

    ANN
    There comes a time when silence is betrayal.- MLK


  4. #4
    Distinguished Community Member
    Join Date
    Apr 2020
    Posts
    103

    Default

    ANN: how did Yours resolve. Was it just slowly over time?
    They hopefully will learn more from this test, or it will lead to more testing.
    Virginia, your words of support mean the world to me. Thank you.

    I can eat breakfast and dinner. The rest of the day is nausea city.

    I had started a new 3000 IU D3 per doc order. So I stopped that 10 days ago in case it caused the nausea as its not FDA regulated. So far, no change.

    The nausea was the straw that broke the camels back. I was managing all of the pain, loss of friendship etc, loss of surfing, loss of reading, was getting used to the isolation, except when DH was at work.

    But the COVID and a major betrayal of my family by a local person, pushed me over the brink and I became anxious. I will start Buspar after IVIG on Wed so I dont confuse any SEs from the BUSPAR with IVIG or with the tests on Tuesday.

    I treated myself to a new pair of summer pjs via amazon mail. So there too.

    I would be lost without my DHs caregiving: He does all the shopping and has learned how to shop at the grocery store: it is an art, as many women know, but didnt know they knew until they depended on others to do it. I can still cook a nice supper for him, which I feel good about.

    I often cannot speak on the phone due to nausea, but I can type.

    I can swim.

    I will post when I can. Sorry I cannot be more giving at this time to this precious board, especially since Rose lost her Jim...

    I am reading The art of happiness by Dali lama on my kindle. That I am grateful for. Still trying to figure out how to use the kindle. Frustrated by tech!!


  5. #5
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    4,296

    Default

    Hello Sunshine,

    My symptoms did get some better over time. I lost 20 of 27 pounds from 9/28 until 12/31. I was miserable and often hungry. I dreamt and daydreamed about food and recipes.

    The fullness and discomfort associated with eating got worse as the day wore on. Breakfast best and supper worst. I always went to bed w the nagging discomfort and fullness and sometimes woke up with it. It seemed to me like a motility problem.

    It hasn’t gone away but I can eat much larger quantities tho not large and I can eat more often. The MS Specialist thought that if motility was the problem, I would be much sicker.

    I don’t know if my experience can help you. I did not have nausea or diarrhea/constipation.

    Thank you for posting and letting us know how you are. You are doing a lot for someone in your situation. It helped me to have many diversions. Night was the worse - too much time to worry. NPR was a help but would not be in these CoVID times.

    Blessings to you,
    ANN
    Last edited by stillstANNding; 05-16-2020 at 08:59 AM. Reason: Edited to add: I also bought new PJ’s from Amazon.
    There comes a time when silence is betrayal.- MLK

  6. The following 7 users say "thanks"


  7. #6
    Distinguished Community Member
    Join Date
    Apr 2020
    Posts
    103

    Default

    I read that MS can affect the vagus nerve that controls part of the stomach. I think it results in a motility problem, and a problem with feeling full too quickly, and maybe not moving food into the intestine. Or something like that.

    No treatment was mentioned in that article.

    Thanks Ann for taking time to type it.


  8. #7
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    4,296

    Default

    The GI said there were two medicines. I think one is erythromycin, which is cheap and I am allergic to. And the second one had very serious side effects that I declined to accept.

    ANN
    There comes a time when silence is betrayal.- MLK


  9. #8
    Distinguished Community Member
    Join Date
    Apr 2020
    Posts
    103

    Default

    Quote Originally Posted by stillstANNding View Post
    This quote is hidden because you are ignoring this member. Show Quote
    The GI said there were two medicines. I think one is erythromycin, which is cheap and I am allergic to. And the second one had very serious side effects that I declined to accept.

    ANN
    DId they think it was an infection, hence erythromycin?


  10. #9
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    4,296

    Default

    No, not infection. Erythromycin, they said, promotes motility. I’ll look for a reference.

    Edited to add:
    This recommends Azithromycin over Errythromycin:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2978393/

    Neurogastroenterology, who knew?
    ANN
    Last edited by stillstANNding; 05-16-2020 at 01:28 PM.
    There comes a time when silence is betrayal.- MLK

  11. The following 6 users say "thanks"


  12. #10
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    4,792
    Blog Entries
    1

    Default

    ((((((Sunshine)))))) ~

    You have so many different issues to endure, and I'm so very sorry. Jonathan and Michael had slow motility and other gastric issues. I have some thoughts, which will be questions for your consideration.

    Can you think of anything that changed in your life, diet, or medication, prior to the onset of nausea? Stress can cause any kind of physical problem. I find it difficult to eat, when my stress level is at its peak.

    Have you tried eliminating different kinds of food as a culprit? Many years ago, I suddenly developed a severe intestinal intolerance of egg yolks. I whittled down the possibilities, until I realized that when I ate yolks, I felt horrible. It took me longer to realize that red meat was wreaking havoc on my intestines and gut.

    Are you bloated, gaseous, filled with fluid in your gut, have heartburn/indigestion?

    Sometimes gastric issues can be related to gallbladder and even UTIs.

    It is true that the brain and the gut are directly connected. I remember discussing this topic on the old Child Neuro forum in the early 2000s, as most of our children have gastrointestinal issues.

    Here are a couple of articles on the brain/gut connection:

    https://www.hopkinsmedicine.org/heal...gut-connection

    https://www.sciencemag.org/news/2018...neuron-circuit

    You are so sweet to think of me and Jim. I'm managing okay, because I'm being supported fully.

    I give thanks for your devoted, loving husband, and that you are still swimming and cooking. You are an amazing, strong woman, an overcomer. Those, who have abandoned you, are the ones, who have lost. Don't let them take your energy. Focus on the ones, who love you, support you, and pray for you. They're right here every day, and there are many others in your world, who are with you too.

    You are never alone on your journey, Sunshine. You are loved and treasured. Lean on us, the ones, who love you and understand, as well as we can, how challenging every day must be for you. You can type. We're here to read and respond.

    Praying that the tests will reveal answers and a simple solution ~

    Blessings upon you ~

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

  13. The following 8 users say "thanks"


Page 1 of 2 12 LastLast

Similar Threads

  1. Replies: 0
    Last Post: 08-26-2019, 07:07 AM
  2. Standing frames?
    By agate in forum Multiple Sclerosis
    Replies: 13
    Last Post: 07-11-2019, 05:02 PM
  3. New folding/standing wheelchair?
    By agate in forum Multiple Sclerosis
    Replies: 3
    Last Post: 01-11-2019, 08:10 AM
  4. Last Man Standing
    By alex44 in forum Chronic Pain
    Replies: 7
    Last Post: 06-08-2017, 11:04 PM
  5. Could this be long standing CJD?
    By lucca2010 in forum Creutzfeldt Jakobs Disease (CJD)
    Replies: 1
    Last Post: 10-27-2015, 09:22 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.