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Thread: Restoration Saga

  1. #71
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    Default More Peace Still

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Michael had a variety of issues with balance and stability. Jonathan was stronger and developed faster, and he walked from the age of 4 to the age of 23 (with a walker). Michael stopped walking at the age of 10, when the seizures began. That's when his life changed. Twenty-two years of intractable seizures daily.

    Jonathan was always Michael's protector. So, it was just natural for Jon to put his arm around Michael for the photo. Extra support to prevent Michael from tipping backward.

    After Michael passed, Jonathan talked about Michael every day, except when he was intubated and couldn't speak. He often requested home movies, so we could all watch what life once was for us.

    Now, they are together with their dad in Bliss.

    I'm grateful that D's dad is improving, and I pray it will continue to be so for him and for D. I know you're prayers are with them, as are many others, and we do know that prayer is powerful.

    You wrote:

    disability is the most diverse global minority
    So true, and it is also the most forgotten minority.

    Every census, which I've completed in my lifetime, did not ask one question about disability. I remember filling them out and complaining to Jim that there were no questions about any household member having a disability.

    Listen to politicians on the campaign trail. How often are people with disabilities acknowledged? Rarely.

    Disabilities do not discriminate on the basis of anything, age, race, religion, birthplace, etc.

    In my advocacy, I often explained to able-bodied people that, while they are fine today, tomorrow, they could slip and fall and break a hip, or have a brain aneurysm, or be in a car accident, or suddenly lose their memory. God willing, none of that happens. But then we become old and frail, with arthritis, cancer. Not one of us is infallible.

    So protecting people with disabilities is like paying for insurance on your health, or home, or vehicle. Should one ever find oneself having a disabling condition, the services and programs are there ready to help them.

    Like Martin Gugino, 75, who was fit and able, a lifelong advocate for human rights, until he was shoved by a Buffalo police officer and hit his head on the pavement. Martin has a brain injury and fractured skull, his condition is upgraded to fair, and he's entering rehab soon.

    https://news.yahoo.com/martin-gugino...003730791.html

    Several years ago, here at CN, we had various threads discussing police brutality against people with disabilities, specifically neurological disabilities. Those incidents did not receive even the slightest amount of media coverage at the time, and those victims are forgotten now.

    We must fight discrimination and stand up for equality for all. We must never stop fighting for the civil rights of every human being on our planet.


    ďUntil we are all free, we are none of us free. Ē

    ― Emma Lazarus
    Send prayers for healing and peace around the world ~



    I love you all and pray for you and your loved ones with gratitude for your love, prayers, and enduring friendship.
    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  3. #72
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    Quote Originally Posted by Earth Mother 2 Angels View Post
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    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    Michael had a variety of issues with balance and stability. Jonathan was stronger and developed faster, and he walked from the age of 4 to the age of 23 (with a walker). Michael stopped walking at the age of 10, when the seizures began. That's when his life changed. Twenty-two years of intractable seizures daily.

    Jonathan was always Michael's protector. So, it was just natural for Jon to put his arm around Michael for the photo. Extra support to prevent Michael from tipping backward.

    After Michael passed, Jonathan talked about Michael every day, except when he was intubated and couldn't speak. He often requested home movies, so we could all watch what life once was for us.

    Now, they are together with their dad in Bliss.

    I'm grateful that D's dad is improving, and I pray it will continue to be so for him and for D. I know you're prayers are with them, as are many others, and we do know that prayer is powerful.

    You wrote:



    So true, and it is also the most forgotten minority.

    Every census, which I've completed in my lifetime, did not ask one question about disability. I remember filling them out and complaining to Jim that there were no questions about any household member having a disability.

    Listen to politicians on the campaign trail. How often are people with disabilities acknowledged? Rarely.

    Disabilities do not discriminate on the basis of anything, age, race, religion, birthplace, etc.

    In my advocacy, I often explained to able-bodied people that, while they are fine today, tomorrow, they could slip and fall and break a hip, or have a brain aneurysm, or be in a car accident, or suddenly lose their memory. God willing, none of that happens. But then we become old and frail, with arthritis, cancer. Not one of us is infallible.

    So protecting people with disabilities is like paying for insurance on your health, or home, or vehicle. Should one ever find oneself having a disabling condition, the services and programs are there ready to help them.

    Like Martin Gugino, 75, who was fit and able, a lifelong advocate for human rights, until he was shoved by a Buffalo police officer and hit his head on the pavement. Martin has a brain injury and fractured skull, his condition is upgraded to fair, and he's entering rehab soon.

    https://news.yahoo.com/martin-gugino...003730791.html

    Several years ago, here at CN, we had various threads discussing police brutality against people with disabilities, specifically neurological disabilities. Those incidents did not receive even the slightest amount of media coverage at the time, and those victims are forgotten now.

    We must fight discrimination and stand up for equality for all. We must never stop fighting for the civil rights of every human being on our planet.




    Send prayers for healing and peace around the world ~



    I love you all and pray for you and your loved ones with gratitude for your love, prayers, and enduring friendship.
    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Hi Rose,

    Jon and Michael sound so sweet together. Iím sorry Michael lost the ability to walk and had to endure seizures starting at only 10 yrs old. Thanks so much for the thoughts and prayers for Dís father. He needs it so badly now.

    This is just a wild guess but perhaps compared to the other types of identity, disability is seen as a private medical thing that is not suitable on a census. When I deal with paperwork for my work or paperwork for education purposes consent and stuff about HIPPA law comes up pretty quickly. Some people I know really freak out when the idea of having stats on disability is brought up. Maybe people just donít want the govt having what they consider private medical info? I fully understand the need for privacy and consent but maybe the ďhush, hush, itís so privateĒ attitude about disability is part of the problem? I donít know. It would be interesting to have those stats. The govt has info on everything else LOL.

    So true. I know disabled people of all races and religions. Disability teaches you that human biology is the same regardless of race or religion so it can be very unifying. Yes I know many people killed or injured by police are disabled. I know these issues with police effect people with autism and various cognitive and mental health disabilities the most. I also heard from my friends who are diabetic that low blood sugar can look like being drunk or otherwise intoxicated. At times low blood sugar can look like aggression or resisting arrest because the personís brain doesnít work at that point. The insulin devices can look like devices used to take illegal drugs. I remember years ago there were stories of people who were having strokes but authorities mistook the stroke systems for being drunk or intoxicated and the people having the strokes died, usually of the stroke itself. :( I remember once a friend of mine with a stutter got mildly drunk but it made his stutter so bad a person who does not know him would think he was heavily intoxicated. I donít expect cops to have the same level of medical knowledge as a doctor but some medical training for cops seems hugely needed given current problems of needless, sad deaths. I donít mean to get political. Itís just my general opinion based on experiences I have observed.

    Yes. Iív seen firsthand how fast disability can happen and how it eventually effects everyone so disability rights should matter to all human rights. The media is certainly part of the problem when fighting for civil rights so maybe that's part of why I make media.
    Last edited by funnylegs4; 06-13-2020 at 07:57 PM.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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  5. #73
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    Default E Pluribus Unum

    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    The government already knows everything about all of us. I would imagine that many people, who have a disabling condition, rely on federal or state support of some kind.

    The purported purpose of the census is for our government to be able to provide services to meet our needs. Social services are tantamount to meeting the needs of disenfranchised people. For the government to meet our needs better, they need to know how many people in the population have a disabling condition.

    I can understand your point about privacy and HIPPA, but I don't think that's the reason why disability isn't asked on the census.

    The officers involved in George Floyd's death, Breonna's death, the young man in Atlanta, who was shot last night, don't need medical training. They need to not be on the police force in the first place.

    This is where defunding police comes into play ~ not getting rid of police, but bringing in social services experts for specific kinds of cases involving mental health and medical issues. Reallocating police funds for military equipment to serve the community in mental health, homeless care, education, training, job opportunities, etc.

    In the mid-70s, my dad served on a jury for a man, who had CP and had been arrested for public intoxication. Why this went to a jury trial, I can't recall, and while this man wasn't beaten, he was manhandled and mistreated. Shoved in a squad car and taken to jail overnight.

    My dad was the jury foreman, and he used his platform to tell the jurors about his two grandsons, who were disabled. "They walk with an awkward gait. I can't imagine, when they are adults, being treated the same way this defendant was treated by these officers. I fear for them and all of their friends, who have an awkward gait or can't communicate effectively. We have to protect all of these folks."

    The jury returned a unanimous verdict favoring the disabled defendant.

    My dad was so proud of the verdict, and I was proud of him for advocating for his grandsons and their peers.

    This is an old, lingering problem in our society, and it needs to be corrected.

    Martin, the peaceful 75 year old protester, who was shoved to the pavement, will likely suffer with side effects for the rest of his life. Headaches, seizures, stroke, bleeding, concussion syndrome, CBE ... the list is very long.

    This just simply has to STOP!

    In my experience, if you're different in anyway, you are subjected to discrimination, prejudice, and persecution. There is no grey area. Either we are are all treated equally, or we are not.

    My beautiful Angels were shunned and betrayed by schools, physicians, Disneyland ride operators, strangers, who crossed the street to avoid them, our government, Medicaid, social services, the casino manager at the Mirage in Las Vegas, who said our boys were bothering the other guests and were underage (we had their ID cards, and they were over 21 at the time), and their biological "donor." (Just a partial list.)

    My prayers are ongoing for peace and unity in bringing our community of people together. All people together. All of us as one. Caring for each other and building strong communities of trust and cooperation and helping each other.

    E Pluribus Unum: Out of many, one.

    I love you all and pray for you and your loved ones, and give thanks for your love and support.



    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  7. #74
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    Default

    ((((((Hugs to All)))))) ~

    In addition to all of the heavy stuff happening in our world right now, I have been endeavoring to clean here and there, catch up on bills and organizing for tax attack, watering plants, filling Michael's pond. I have to be very careful in the backyard, as there are many roots from our tree throughout and the pond is surrounded by large river rocks. It can be precarious.

    But, I haven't been overdoing it. I did for a couple of days, then I realized I needed to rest, so I have been. I feel guilty, when I'm not doing something, because there are so many things needing to be done. That's the story of my entire adult life. I just keep reminding myself of that, which helps with the guilt. I need a "vacation" from doing stuff.

    I'm trying. I can't change anything, wave a magic wand and have it all be as it should be or as I want it to be or have my beloveds in my arms again. I just have to take it as it comes and go with the flow.

    Thank you all for your love, prayers, and support. Please pray for Virginia, who has been feeling unwell for a couple of days. Thank you so much.

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  9. #75
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    Quote Originally Posted by Earth Mother 2 Angels View Post
    This quote is hidden because you are ignoring this member. Show Quote
    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    The government already knows everything about all of us. I would imagine that many people, who have a disabling condition, rely on federal or state support of some kind.

    The purported purpose of the census is for our government to be able to provide services to meet our needs. Social services are tantamount to meeting the needs of disenfranchised people. For the government to meet our needs better, they need to know how many people in the population have a disabling condition.

    I can understand your point about privacy and HIPPA, but I don't think that's the reason why disability isn't asked on the census.

    The officers involved in George Floyd's death, Breonna's death, the young man in Atlanta, who was shot last night, don't need medical training. They need to not be on the police force in the first place.

    This is where defunding police comes into play ~ not getting rid of police, but bringing in social services experts for specific kinds of cases involving mental health and medical issues. Reallocating police funds for military equipment to serve the community in mental health, homeless care, education, training, job opportunities, etc.

    In the mid-70s, my dad served on a jury for a man, who had CP and had been arrested for public intoxication. Why this went to a jury trial, I can't recall, and while this man wasn't beaten, he was manhandled and mistreated. Shoved in a squad car and taken to jail overnight.

    My dad was the jury foreman, and he used his platform to tell the jurors about his two grandsons, who were disabled. "They walk with an awkward gait. I can't imagine, when they are adults, being treated the same way this defendant was treated by these officers. I fear for them and all of their friends, who have an awkward gait or can't communicate effectively. We have to protect all of these folks."

    The jury returned a unanimous verdict favoring the disabled defendant.

    My dad was so proud of the verdict, and I was proud of him for advocating for his grandsons and their peers.

    This is an old, lingering problem in our society, and it needs to be corrected.

    Martin, the peaceful 75 year old protester, who was shoved to the pavement, will likely suffer with side effects for the rest of his life. Headaches, seizures, stroke, bleeding, concussion syndrome, CBE ... the list is very long.

    This just simply has to STOP!

    In my experience, if you're different in anyway, you are subjected to discrimination, prejudice, and persecution. There is no grey area. Either we are are all treated equally, or we are not.

    My beautiful Angels were shunned and betrayed by schools, physicians, Disneyland ride operators, strangers, who crossed the street to avoid them, our government, Medicaid, social services, the casino manager at the Mirage in Las Vegas, who said our boys were bothering the other guests and were underage (we had their ID cards, and they were over 21 at the time), and their biological "donor." (Just a partial list.)

    My prayers are ongoing for peace and unity in bringing our community of people together. All people together. All of us as one. Caring for each other and building strong communities of trust and cooperation and helping each other.

    E Pluribus Unum: Out of many, one.

    I love you all and pray for you and your loved ones, and give thanks for your love and support.



    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Hi Rose,

    Let me be clear that I completely agree that the cops involved in George Floyd's death, Breonna's death, and the young man in Atlanta’s death, whose name I can’t spell at the moment need to be charged for murder and locked up ASAP. I was referring more to cases where disabled people die in custody because the disability is mistaken for something else illegal. My biggest apologies for not being clear in this distinction dear friend. Kudos to your dad! Right on!! Regarding the man your dad advocated for, one of my friends with CP was indeed arrested for intoxication because the cops mistook spasticity for being drunk. My friend with CP was slammed against the squad car to be handcuffed which could have led to a serious injury, my friend with CP was only released because his mother showed up and verified the medical diagnosis of Cerebral Palsy via paperwork she had with her the same day. Oy! My other friend who uses a power chair was also advised not to get drunk while operating the power chair because the cops view driving a power chair drunk as a form of drunk driving. I’m NOT kidding. I have never gotten confirmation about whether impaired power chair driving could get someone arrested but it concerned me a lot. I don’t drink for these reasons. Plus drinking is NOT good for my health.

    Yes my friends and I have to provide our diagnosis to get most accommodations so I’m sure the government has a rather lengthy file on me LOL. Hope they at least find it interesting to read. LOL.

    Good news, D’s father with the stroke is speaking and his sense of humor has returned. :) Thank God!
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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  11. #76
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    ((((((Hugs to All)))))) ~

    Wonderful news that D's father is improving! May it continue to be so.

    No need to apologize, and thank you for clarifying your point for me.

    Unfortunately, many police officers, who have been trained in how to recognize a disability and show respect and understanding, still assault disabled people in custody.

    The examples you gave about your friend with CP and your friend in a wheelchair are probably fairly recent in history. The cases of police brutality against people with disabilities, which we've discussed here on CN, are only a few years old. My dad's experience was a nearly 50 years ago. Half of a century.

    This is a systemic, long standing problem, which has no simple solution. But, we must start somewhere. We might begin by affirming that we are all equal by the law of our nation. We are all entitled to "life, liberty, and the pursuit of happiness."

    Prayers for peace around the world and equality for all.

    Thank you for sharing your thoughts and experiences, funnylegs4. We learn from each other, which is how it is supposed to be. All of us are one.



    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  13. #77
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    Quote Originally Posted by Earth Mother 2 Angels View Post
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    ((((((Hugs to All)))))) ~

    Wonderful news that D's father is improving! May it continue to be so.

    No need to apologize, and thank you for clarifying your point for me.

    Unfortunately, many police officers, who have been trained in how to recognize a disability and show respect and understanding, still assault disabled people in custody.

    The examples you gave about your friend with CP and your friend in a wheelchair are probably fairly recent in history. The cases of police brutality against people with disabilities, which we've discussed here on CN, are only a few years old. My dad's experience was a nearly 50 years ago. Half of a century.

    This is a systemic, long standing problem, which has no simple solution. But, we must start somewhere. We might begin by affirming that we are all equal by the law of our nation. We are all entitled to "life, liberty, and the pursuit of happiness."

    Prayers for peace around the world and equality for all.

    Thank you for sharing your thoughts and experiences, funnylegs4. We learn from each other, which is how it is supposed to be. All of us are one.



    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Hi Rose,

    You’re very welcome! Thanks so much! The incidents I described to you happened 12 years ago. So I hope and pray some things in regards to police and disability improved since then. I have seen improvements in other areas of society where disability is concerned. I know things are far from perfect. I don't expect a simple answer. So it’s so sad to know your dad did that case 50 years ago when a similar story happened 12 years ago. There are definitely some huge issues in policing. I don’t get the impression cops get medical trainings beyond first aide level things like overdose and birthing babies. I could be entirely wrong of course. Yes we are one. My prayers to you always.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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  15. #78
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    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    I'm not sure that police officers are even trained in overdose or birthing babies. They likely call the fire department or EMTs in those situations. They should be trained in how to handle victims of an accident, like applying a tourniquet or not moving a victim. They should know CPR, of course. The police officers I've known in my life have never delivered a baby.

    Yes, my dad's experience was 50 years ago, but police brutality toward people of color and/or with a disability has been a problem for much longer than that. I feel that the military weapons given to our police forces only exacerbate the problem.

    I often think about the young officer, who was here for Jonathan and Jim, and how emotional he was and forthcoming with his feelings. He learned empathy from our family. He saw love, devotion, courage, and strength regardless of how difficult life became for us.

    I told him, "Never, ever lose that. Never forget us. Take us with you on every call, and remember that everyone has a story. Treat them with the kindness you have shown to our family."

    I worry that he is too sweet, too naive to live in the world of policing today. I pray for him, and I believe that Jim, Jonathan and Michael are watching over him. What are the odds that he would be on duty and available that morning for Jim?

    Anyway ... change is desperately needed and has been for centuries.

    Thank you so much for your prayers. My prayers are with you and your loved ones.



    Love & Light,



    Rose
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  17. #79
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    Quote Originally Posted by Earth Mother 2 Angels View Post
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    ((((((Hugs to All)))))) ~

    funnylegs4 ~

    I'm not sure that police officers are even trained in overdose or birthing babies. They likely call the fire department or EMTs in those situations. They should be trained in how to handle victims of an accident, like applying a tourniquet or not moving a victim. They should know CPR, of course. The police officers I've known in my life have never delivered a baby.

    Yes, my dad's experience was 50 years ago, but police brutality toward people of color and/or with a disability has been a problem for much longer than that. I feel that the military weapons given to our police forces only exacerbate the problem.

    I often think about the young officer, who was here for Jonathan and Jim, and how emotional he was and forthcoming with his feelings. He learned empathy from our family. He saw love, devotion, courage, and strength regardless of how difficult life became for us.

    I told him, "Never, ever lose that. Never forget us. Take us with you on every call, and remember that everyone has a story. Treat them with the kindness you have shown to our family."

    I worry that he is too sweet, too naive to live in the world of policing today. I pray for him, and I believe that Jim, Jonathan and Michael are watching over him. What are the odds that he would be on duty and available that morning for Jim?

    Anyway ... change is desperately needed and has been for centuries.

    Thank you so much for your prayers. My prayers are with you and your loved ones.



    Love & Light,



    Rose
    Hi Rose,

    I’v seen some things in the media of cops having to deal with drug emergency and birthing because they just happen to be the only person there at the moment and they did a Very decent job of it given the circumstances. I would think most cops have CPR training. The cop who helped with Jon and Jim’s passing sounds like an absolutely delightful person and I certainly send all my prayers for his safety and health!! Yes, it’s amazing he was available when Jim passed!
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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  19. #80
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    Default Happy Father's Day, Jim

    ((((((Hugs to All)))))) ~

    The approaching weekend will be a challenge for me. Saturday is 2 months since Jim's passing. Sunday is Father's Day.

    For his first Father's Day with us, we gave Jim lots of gifts, among them a small tapestry pillow with the words: "Any man can be a father, but it takes someone special to be a Dad."

    You all know why I refer to Jim as "the world's most wonderful Dad." He never hesitated for a second in providing all of the care Jonathan and Michael needed. From building ramps for access in our home to a covered trailer for their equipment so we could take a 2 week vacation in Utah, to sitting at their ICU bedside every night and tending to all of their medical issues.


    JIM, THE NATURAL DAD

    We never used the term "Stepdad," because Jim is their DAD. And every medical professional, who witnessed Jim with his sons knew that he was their Dad, their incredibly loving, caring, strong, constant protector. That is the most endearing quality about Jim to all of the people, who cared for Jon and Michael, and who cared for Jim.

    In the middle of his life, we met, fell in love and became a family of four. Inseparable. Devoted. Loving. Living. Laughing. Dancing. Cuddling. Hugging. Sharing everything.

    How many men, at his age, would have taken on this challenge? Not many. Very few. Becoming the one and only Dad to two men in their early 20s with severe disabilities and medical issues is remarkable any way you look at it.

    CHANGE IN DIRECTION

    Jim was a strong, husky man from his life of scaffolding and construction. Our boys felt secure and safe in his arms, with his gentle comforting touch. He quickly learned everything about their care needs, and he soon became an expert at all of them. Talk about a change in direction!

    Jim was more efficient at suctioning Jon's trache than I was. Once, when Jon's trache came out on Jim's shift, about 4 a.m. (everything happens then, it seems, as I look back on our life together), he woke me up. I was flummoxed, so Jim took over and inserted that trache like a pro.

    When Jon had blood in his urine and needed his indwelling catheter flushed repeatedly, we worked as a team, but Jim was always the one handling the syringe and flushing. I was his nurse, handing him supplies, filling the syringe with saline, etc.

    Jim was a G-Tube King! He gave the boys meds, hung their formula, flushed their tubes, let the air out of their bellies, gently pressing on their tummy with the tube open.

    Absolutely nothing deterred Jim from caring for his sons. Nothing.

    Movies, concerts, sports, anything on TV, and Jim was with his sons, watching, singing, dancing with them, or rooting for our favorite teams. In our early years together, before Michael's and Jonathan's conditions progressed, Jim ensured that we had many outings to live concerts, assorted restaurants for breakfast, lunch or dinner, mini vacations, picnics, a "normal life."

    During the entire restoration process, I told everyone, "my husband installed all of these Pergo floors, these doors, the windows, the patio door, the deck, these shelves ... by himself, no crew to help him." And, he was middle aged. And, he was taking care of Michael and Jonathan with me.

    OUR TEAM

    While Jim was doing all of these marvelous things as a Dad, he was taking care of me.

    Two weeks after our wedding, Michael was in the hospital with pneumonia. After 12 hours at the hospital, I would arrive home, and Jim would literally lift me out of the van and into the house. There, waiting for me, was a bubble bath, with candles, soft music, and a glass of wine. Jim had been at home with Jon, made a meal for us, Jon was fed, in bed sleeping.

    When we started working in shifts, during hospital stays, I was on day shift, and Jim was on night shift, and we were on the phone 24 hrs sorting out what our boys needed. Sometimes Jim would make a crock pot meal in the day, before he went to sleep. Sometimes, I would cook a meal for us before he went to the hospital at 10 p.m. Sometimes he would make breakfast for me, before I started my shift at 9 a.m.

    Teamwork. We perfected it.

    When cancer began taking away Jim's strength and independence, he was most concerned about Jonathan and me. He missed being with Jonathan. He missed helping with Jon's care. And he felt guilty that I was carrying the water for Jon and him.

    After Jonathan passed, in our last year together, Jim helped me many times through our sorrow and grieving for Jon. As Jim's condition declined, he still remembered our boys and acknowledged my sadness and what awaited me after he passed.

    On this Father's Day, Jim is reunited with Jonathan and Michael in Bliss, and they are free of their physical vessels. They will have a glorious Father's Day together, which will actually be like every other day in their realm. Glorious.

    I will be here, blessed with the memories of our family unit and the love we share through eternity.

    HAPPY FATHER'S DAY JIM!

    I love you and miss you terribly, Jim, Jon, and Michael, but I know that you are whole and together, and there is where I find my comfort.

    I remain strong for you, My Beloveds.

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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