I've posted on this forum before, but I saw a neurologist yesterday about my orthostatic symptoms (orthostatic tinnitus, imbalance, rapid heart rate the longer I'm upright, memory loss, cognitive trouble, orthostatic headache, orthostatic neck pain + fatigue, nausea, how my tinnitus and headaches 'chime' whenever I nod my head, etc).
She blamed it on migraines! I kept trying to tell her my ENT's tried to blame it on migraines 2 years ago, putting me on several different migraine meds that didn't do anything for my symptoms! She's now prescribing me duloxetine which is an anti depressant (?). So I should be seeing my GP again in a week or two to talk about weaning off my old meds.
I was annoyed because I was discharged from the neurology clinic and she said duloxetine will ''fix all your symptoms'' but I'm extremely skeptical. She dismissed the idea of a spinal leak or even chiari type 0. She said she couldn't see any ''structural abnormalities'' on my brain from a supine MRI without contrast in 2018. I've had these symptoms literally every single day almost 24/7 since 2009/2010. I also have a syrinx in my spine that has not been scanned for at least 8 years and she says the syrinx (cyst in spinal cord) can't be causing any blockage or problems even though it has not been scanned to see if it's grown.
I'm very very disappointed because I have the feeling this is just going to be another round of sugar pills (pills that do nothing) and I'm going to have to wait another 6 months suffering every day to get a second opinion. Literally everyone I've spoken to who has the exact same symptoms as I do (orthostatic tinnitus and orthostatic headache + cognitive problems) ended up being diagnosed with a CSF leak and one with CCI. I've not been tested for either and this neurologist was adamant all my symptoms are migraines and refuses to test me for low CSF pressure, wonky CSF flow, or CCI.
What do you think? Has anyone here went through something similar?
She blamed it on migraines! I kept trying to tell her my ENT's tried to blame it on migraines 2 years ago, putting me on several different migraine meds that didn't do anything for my symptoms! She's now prescribing me duloxetine which is an anti depressant (?). So I should be seeing my GP again in a week or two to talk about weaning off my old meds.
I was annoyed because I was discharged from the neurology clinic and she said duloxetine will ''fix all your symptoms'' but I'm extremely skeptical. She dismissed the idea of a spinal leak or even chiari type 0. She said she couldn't see any ''structural abnormalities'' on my brain from a supine MRI without contrast in 2018. I've had these symptoms literally every single day almost 24/7 since 2009/2010. I also have a syrinx in my spine that has not been scanned for at least 8 years and she says the syrinx (cyst in spinal cord) can't be causing any blockage or problems even though it has not been scanned to see if it's grown.
I'm very very disappointed because I have the feeling this is just going to be another round of sugar pills (pills that do nothing) and I'm going to have to wait another 6 months suffering every day to get a second opinion. Literally everyone I've spoken to who has the exact same symptoms as I do (orthostatic tinnitus and orthostatic headache + cognitive problems) ended up being diagnosed with a CSF leak and one with CCI. I've not been tested for either and this neurologist was adamant all my symptoms are migraines and refuses to test me for low CSF pressure, wonky CSF flow, or CCI.
What do you think? Has anyone here went through something similar?
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