Hi Braintalk forums
Since 2010 I've had the onset of a 'syndrome' that has yet to be diagnosed and I'm having to wait a long time to see a neurologist and I'm getting desperate for answers. I'm wondering if anyone else is going through the same thing or has known someone with the same symptoms. My condition is worsening and I'm now experiencing moderate cognitive decline including memory loss and symptoms other people have said is similar to dementia. I am only 26 years old and sometimes forget simple tasks such as how to make a cup of tea. I am also having issue with language. i often psause when speaking, when this didnt happen before. I also keep tripping up on my words and my sentences are sometimes broken with me missing out in between words like ''and'' ''to'' ''the'' ''when'' etc .
My first symptoms were orthostatic (caused by being upright) tinnitus, migraines, and vertigo. I would say the tinnitus was the first symptom.
Since then my symptoms have gotten worse and take a longer period of lying down to improve. Back in 2010, my tinnitus for example was mild and just one noise. Now, it is three noises and it is literally defeaning. I'm on strong pills (prochloroperazine) to dampen my auditory system of my brain. I am also on anti migraine pills (pizotifen) but they do not seem to help much. I have debilitating fatigue, imbalance, headaches, back/neck pain, and also tremors in my extrmeties.
i have had episodes of syncope (fainting) and these do not come on suddenly but i will feel progressively fainter over the course of 5 minutes before fainting. the closer i am to fainting, the harsher the tinnitus and headaches are. this to me is evidence the headaches + tinnitus seem to be some kind of ''warning'' alarm.
7/10 times i see a doctor there is ''bubbly fluid'' behind my eardrum, but no sign of infection and I had an MRI of my inner ears done last year and they could not find any evidence for eustacean tube dysfunction .
I also get very irritable at night and sensitive to light and sounds .
In the past year alone my symptoms have accelerated and now after sleeping for 8 hours my symptoms will only be 80% gone rather than 100% gone which is really concerning me.
It's very hard to chase up doctors appointments at the moment but I want to know if anyone else is going through or has gone through the same thing. Here's a list of things that have been ruled out;
Meniere's disease
Migraines
Hearing loss
Glue ear (as symptoms persist even with no fluid behind the ear)
Acoustic neuroma
I have only had lying down MRI without contrast.
Since 2010 I've had the onset of a 'syndrome' that has yet to be diagnosed and I'm having to wait a long time to see a neurologist and I'm getting desperate for answers. I'm wondering if anyone else is going through the same thing or has known someone with the same symptoms. My condition is worsening and I'm now experiencing moderate cognitive decline including memory loss and symptoms other people have said is similar to dementia. I am only 26 years old and sometimes forget simple tasks such as how to make a cup of tea. I am also having issue with language. i often psause when speaking, when this didnt happen before. I also keep tripping up on my words and my sentences are sometimes broken with me missing out in between words like ''and'' ''to'' ''the'' ''when'' etc .
My first symptoms were orthostatic (caused by being upright) tinnitus, migraines, and vertigo. I would say the tinnitus was the first symptom.
Since then my symptoms have gotten worse and take a longer period of lying down to improve. Back in 2010, my tinnitus for example was mild and just one noise. Now, it is three noises and it is literally defeaning. I'm on strong pills (prochloroperazine) to dampen my auditory system of my brain. I am also on anti migraine pills (pizotifen) but they do not seem to help much. I have debilitating fatigue, imbalance, headaches, back/neck pain, and also tremors in my extrmeties.
i have had episodes of syncope (fainting) and these do not come on suddenly but i will feel progressively fainter over the course of 5 minutes before fainting. the closer i am to fainting, the harsher the tinnitus and headaches are. this to me is evidence the headaches + tinnitus seem to be some kind of ''warning'' alarm.
7/10 times i see a doctor there is ''bubbly fluid'' behind my eardrum, but no sign of infection and I had an MRI of my inner ears done last year and they could not find any evidence for eustacean tube dysfunction .
I also get very irritable at night and sensitive to light and sounds .
In the past year alone my symptoms have accelerated and now after sleeping for 8 hours my symptoms will only be 80% gone rather than 100% gone which is really concerning me.
It's very hard to chase up doctors appointments at the moment but I want to know if anyone else is going through or has gone through the same thing. Here's a list of things that have been ruled out;
Meniere's disease
Migraines
Hearing loss
Glue ear (as symptoms persist even with no fluid behind the ear)
Acoustic neuroma
I have only had lying down MRI without contrast.
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