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Thread: So, two months of coughing......

  1. #51
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    Linda, a case of “Feather Duvet Lung” was reported widely in November:

    https://www.theguardian.com/science/...her-duvet-lung

    ANN
    There comes a time when silence is betrayal.- MLK

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  3. #52
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by stillstANNding View Post
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    Linda, a case of “Feather Duvet Lung” was reported widely in November:

    https://www.theguardian.com/science/...her-duvet-lung

    ANN
    I read the article, thanks. No feathers on my bed. I always worried about how they got those feathers...!
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  5. #53
    Distinguished Community Member Lazarus's Avatar
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    Still coughing....lots of mucus back too. But I can go hours without coughing and with clear sinuses. I have an appointment with a lung doctor Thursday and a heart guy at the end of February.
    But today I looked at the Mayo Clinic site about side effects of rituxan and found this:

    “Call your doctor right away if you start to have a cough that won't go away, weight loss, night sweats, fever, chills, flu-like symptoms (eg, runny or stuffy nose, headache, blurred vision, or feeling generally ill), painful or difficult urination, or sores, ulcers, or white spots in the mouth or on the lips. These may be signs that you have an infection.“ The next paragraph talked about shortness of breath which is also a new symptom of mine . Not sure how they could tell what is causing my problems but coughing, nightsweats,stuffy nose and shortness of breath are all part of my current situation. Hmmmmmmm.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  7. #54
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    That would be a dilemma, Linda.

    I wish you well.
    ANN
    There comes a time when silence is betrayal.- MLK

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  9. #55
    Distinguished Community Member agate's Avatar
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    Has your doctor thought about the possible Rituxan connection, Linda?
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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  11. #56
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    Linda, I hope it is not Rituxan. Thatís the reason they would not let me have the drug that is like Rituxan. Canít remember the name. Hope they get to the bottom of this soon.

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  13. #57
    Distinguished Community Member nuthatch's Avatar
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    I hope it's not but there's this article.
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2790794/

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  15. #58
    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by Virginia View Post
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    Linda, I hope it is not Rituxan. Thatís the reason they would not let me have the drug that is like Rituxan. Canít remember the name. Hope they get to the bottom of this soon.
    Would that be Ocrevus (ocrelizumab)?
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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  17. #59
    Distinguished Community Member Lazarus's Avatar
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    We are all in the testing and information stage. If it were the rituxan I would switch to Ocrevus which is the same but processed slightly differently. Rituxan has a great record and I am hoping it is not that. There is just as much chance it is related to the leaky heart valve I have. If that has worsened at least it could be fixed so I am hoping it is a heart problem?..?!!

    Lyme disease has many of the symptoms I have so I am looking into that also...I had Lyme in 1983 and it may be what started the development of my MS because it was untreated.

    Thanks everyone for the responses. I am well much of the day but in big trouble much of the day. And I cannot work on the farm more than an hour. I appear to be facing a brick wall and am looking for the hole in it!
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  19. #60
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    ((((((Linda)))))) ~

    When is your next doctor's appointment? I hope that you are sharing your thoughts and concerns about Rituxan, your leaky heart valve, and Lyme Disease with your doctor now. Any tests, which could rule in/out those possibilities would be helpful.

    Thinking of you and sending you healing prayers ~

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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