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Thread: Shortage of IVIG

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Shortage of IVIG

    My infusion center called and cancelled my next IVIG next week, indefinitely due to the national shortage of Gammaguard. This is scary and frustrating.

  2. #2
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    It is indeed scary. This medication shortage is not life threatening to you is it???
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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  4. #3
    Distinguished Community Member Sunshine's Avatar
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    It could be. I also use it for Common Variable Immune Deficiency. WIthout it, I am susceptible to infection. Before IVIG was constantly getting bronchitis and sinus infections—and pneumonia twice... I was never well. IVIG has changed my life.

    It also treats the SPS (and the MS)— it has banished the MS fatigue, it has reduced muscle spasms from the SPS. Any infection triggers horrible spasms in my legs. So, its a complicated scenario.
    I figure if I could at least get it once a month, the CVID would be taken care of. That would be huge.

    But, the center doesnt know when they will be able to get it in again.

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