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Thread: Stiff Person in the News Feed

  1. #41
    Distinguished Community Member Sunshine's Avatar
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    A useful Personal Blog on living with SPS...
    https://www.iowastatedaily.com/polit...9801478d3.html

  2. #42
    Distinguished Community Member Sunshine's Avatar
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    New genome testing technique to differentiate several diseases from each other: CMT, SPS, Dystonia, etc.

    https://charcot-marie-toothnews.com/...es-case-study/

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  4. #43
    Distinguished Community Member Sunshine's Avatar
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    An article about ocular manifestations in some people with Stiff Person Syndrome
    https://www.semanticscholar.org/pape...f1a16b1f91354d

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  6. #44
    Distinguished Community Member agate's Avatar
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    I don't know if this is very useful but if you don't want it here, Sunshine, I can remove it--"5 Things You Should Know about Stiff Person Syndrome":

    https://www.yahoo.com/lifestyle/5-th...224146623.html
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  9. #46
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    https://www.deseret.com/utah/2020/6/...ravien-parsons

    A story about a young woman, teacher with SPS, her challenges and her yard sale to buy a handicap van that allows her to put her power chair in it and go to school to teach.

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  11. #47
    Distinguished Community Member agate's Avatar
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    Another account about a person with stiff-person syndrome--in "Today" (October 21), "'I Often Can't Move': What It's Like to Live with Stiff-Person Syndrome":

    https://www.today.com/health/what-st...-story-t195466
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  13. #48
    Distinguished Community Member agate's Avatar
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    Here's someone doing what he can to help:

    https://www.theadvocate.com.au/story...ing-challenge/

    He seems to have a US doctor who has SPS, and he himself has SPS.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  15. #49
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    Quote Originally Posted by agate View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Here's someone doing what he can to help:

    https://www.theadvocate.com.au/story...ing-challenge/

    He seems to have a US doctor who has SPS, and he himself has SPS.
    This man might have a milder version of SPS. Afteral, I was surfing until the SPS worsened.

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