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Thread: Stiff Person in the News Feed

  1. #21
    Distinguished Community Member agate's Avatar
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    Someone with SPS who had a stem-cell transplant:

    http://www.fredhutch.org/en/news/cen...ransplant.html
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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  4. #23
    Distinguished Community Member Sunshine's Avatar
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    https://journals.lww.com/neurotodayo....aspx?PostID=3

    Longitudinal study of SPS shows it worsens over time. Gold standard treatment to delay worsening includes IVIG and muscle relaxants.

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  8. #27
    Distinguished Community Member Sunshine's Avatar
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    https://wwl.radio.com/articles/louis...l-pot-products

    https://www.nola.com/news/healthcare...996ca6444.html

    These are articles about MMJ and its use for medicinal reasons. They use the example of “Claire” with SPS who uses MMJ for pain.

    The second article goes into many medical conditions, including Claire’s SPS further down in the article.

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  10. #28
    Distinguished Community Member Sunshine's Avatar
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    https://www.networknewswire.com/term...tch-treatment/

    It is hard to know exactly what helped this man. Reading the article, I think it might’ve been a baclofen pump. I will try to learn more by seeing if I can contact the journalist who wrote the article.

    I found the man on FB, and tried to message him, but couldnt without friending him first. So I did that, but likely will not hear from him as I am a stranger to him...ideas?

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  12. #29
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Sunshine)))))) ~

    Perhaps you could contact him through the San Antonio Fire Department's FB page?

    https://www.facebook.com/SANANTONIOFIREDEPARTMENT/

    I also suspect that he has a Baclofen pump.

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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  14. #30
    Distinguished Community Member Sunshine's Avatar
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    https://www.ncbi.nlm.nih.gov/pubmed/31543806

    SPS masquerading as Compartment Syndrome.

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