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Thread: Question for anyone who has had MS drugs by infusion

  1. #11
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Hugs to All)))))) ~

    Jon's home health nurse has cared for several MS patients. She does infusions in their home (she's an RN and worked in an oncology infusion center decades ago). In fact, after she drew Jon's blood last week, her next patient was receiving an infusion. That one only lasted an hour, but she's had all day infusions, 4 + hour infusions, etc.

    Jim goes to an infusion center at our hospital for his Opdivo infusions (previously for chemo as well). Not all patients in the center have cancer. However, the cancer patients will be transferred to a new infusion center in the Medical Offices building across the street from the hospital. The center will be on the same floor as the oncologists.

    This will make it so much easier for the patients. As it is now, once a month, Jim has a blood draw and sees his doctor, then walks to the hospital for his infusion. For his other infusions during the month, he goes straight to the hospital. But he still parks at the Medical Offices, because they have faster valet service.

    I would guess that home infusions would be less expensive, because doctors and hospitals have overhead costs to add onto their charges.

    Hi Jendi!

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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  3. #12
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    I think it’s much safer in a hospital setting. I’d have steroids (if I needed them) in an infusion center but I’d want to be in a hospital for any of the other MS drugs or IVIG.

    ANN
    There comes a time when silence is betrayal.- MLK

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  5. #13
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((ANN)))))) ~

    I've never had an infusion, but if I needed one, I'd want to be in a hospital setting also. Jim praises the infusion nurses for their knowledge, skills, patience, compassion, and efficiency. He's been there A LOT, and he's never seen a patient in distress.

    Moving the infusion center to the Medical Offices is still like a hospital setting. The offices have every kind of specialist, and they probably have crash carts. The hospital is across the street, and I would guess they have a tunnel to expedite patients from the offices to the hospital.

    Jim crosses on a bridge over the main street, and uses an elevator to access it. I can't envision that as a good way to transport a patient in distress.

    I hope the nutritionist gives you great advice on Tuesday!

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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  7. #14
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    Rose, that is how the MS infusion center here is as far as having the trained nursing staff and Doctors are in the room next to them. There is not a hospital that close, but is one close by, probably 5 to 10 min.
    Virginia

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  9. #15
    Distinguished Community Member Cherie's Avatar
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    Infusion centers in MS Clinics also charge a facility fee. If a Dr's office has an infusion suite, they charge a facility fee.

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  11. #16
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    Cherie, it is my understanding, that this group of Doctors are making a lot of money from the infusion center. I was told this by people who go there for their infusions.
    Virginia

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  13. #17
    Distinguished Community Member agate's Avatar
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    In the book where I read this, the author was making the point that often the "facility fees" are often quite inflated--thus driving up the total charge for whatever service is being provided.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #18
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    I read that book too last yearl. It doesn’t pertain to all centers, but this is a problem for sure.

    I do mine in a hospital infusion center. There are oncologists downstairs, and the hospital is next door. It staffed with about 7 RNs, very experienced, all kinds of meds etc. THere is a pharmacy in it as well where the meds are kept.

    In 2 years I have had 4 events where I would’ve been in the ER had I done the home based subcutaneous infusion rather than the IV infusion of immugobulin.

    Yesterday I had a mini episode. Despite all my meds plus extra Ativan to relax the muscles, I had a brief ankle spasm. Glad I was at the center and not at home for it. It resolved quickly and the RN was at my side in 5 seconds,

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