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Thread: Useful sites for learning about Stiff Person Syndrome

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    Distinguished Community Member Sunshine's Avatar
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    Default Useful sites for learning about Stiff Person Syndrome

    Here are useful websites...some are research, university sites. Some are patient experiences.
    The site that’s incredibly useful and comprehensive (start with it first) is:

    http://www.thetinman.org/


    Other sites include:

    https://themighty.com/2017/08/tin-man-syndrome/


    https://www.hopkinsmedicine.org/neur...ome/index.html


    https://rarediseases.info.nih.gov/di...erson-syndrome

    http://www.thetinman.org/

    https://www.ninds.nih.gov/Disorders/...formation-Page

    https://www.disability-benefits-help...ity-disability

    https://healthylivingmagazine.us/Articles/11108/

    I will add to this thread until it’s more complete. So stay tuned...
    Last edited by Sunshine; 07-06-2018 at 01:10 PM.

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    Distinguished Community Member Sunshine's Avatar
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    Default

    https://www.facebook.com/groups/spsaonline/

    This is a closed group you can join. Closed means google can’t search it. Only members see posts. But it’s not anonymous unless your FB name is fake.

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    Distinguished Community Member Sunshine's Avatar
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    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2676978/

    An article about GAD65 patients vs Amphiphysin patients

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