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  1. #441
    Distinguished Community Member Sunshine's Avatar
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    SPS has been kicking my butt, but I still swim nearly every day. Then rest....
    It is so hard to cope with such remarkable pain and loss...Trying hard. Embroidery takes my mind off of the negative worrying...

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  3. #442
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    I still swim 1/2 mile a day unless there is a doc visit. Have to swim very early before DH goes to work.

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  5. #443
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    Still swimming 1/2 mile daily before DH goes to work. However, the disease has created dysmotility of the GI tract, necessitating 2x weekly warm water enemas, which nixes out swimming for the day. So, I swim 3 to 5 times a week depending on dr visits as well.

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  7. #444
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    Quote Originally Posted by Sunshine 2 View Post
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    Still swimming 1/2 mile daily before DH goes to work. However, the disease has created dysmotility of the GI tract, necessitating 2x weekly warm water enemas, which nixes out swimming for the day. So, I swim 3 to 5 times a week depending on dr visits as well.
    And this continues. SPS has been getting worse, and not responding well to IVIG. Will try again this week and hoping. What a terrible disease.

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