Stiff Person Syndrome has a domino effect. We are not on our feet enough, or exercising enough which can contribute to osteoporosis in older patients, emergence of cardiac and cholesterol problems due to lack of walking and aerobic exercise.
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Yesterday’s IVIG is reaping benefits. I was able to walk from the car to the pool capably without frantically looking for supports in the way.
I was able to do 650 Yards in 21 minutes uneventfully, still not brave enough to risk spasm by doing more. The warm air helped since there was no shivering;)
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Good suggestion on the Velcro.
Truly feel bombarded now a days. I carry foam ear plugs with me to help tone down the noise. I refuse to give up everything. Hibernating which is what feels easiest just is not worth the other price. Got to push ahead. Continue to educate friends, family and care givers.
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You and I seem to be in the same page. My psych health is always better if I have at least one trip away from my house cocoon.
Which ear plugs work for you? So far I can’t find any.
Am starting a lobbying for FAA to clamp down on touch and go flights by flight schools. It will be a slog and it creates pain.
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It was a beautiful Florida winter day with air temp 75, zero wind, cool ocean 76F. The waves were clean and turquoise, thigh to hip high , breaking gently.
I was frightened to go what with my traitorous body and recent crisis swimming. My DH said, you will see your friends and you don’t have to get wet if you don’t want.
But of course, as he wheeled me to the ocean and a buddy strapped on my leash, just looking at the water got me frothing. The paddle out was so easy, just gliding out to the lineup.
Am happy to say I got two nice floaty waves, one easy wipeout, and one had to bail after popping up as a dudette was coming right at me. It was her wave, my bad.
There were plenty of sharks out there.
I have learned to stop with the slightest muscle warning. So, while it would’ve been nice to keep on out there, it was great to have had the fun.
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