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Thread: Number of US MS cases now 947,000 instead of 400,000 according to NMSS

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    Distinguished Community Member agate's Avatar
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    Default Number of US MS cases now 947,000 instead of 400,000 according to NMSS

    Close to a million people are now estimated to have MS in the US, and that is quite different from the 400,000 we've been hearing about for years. The National MS Society did a new prevalence study, using different methodologies, and came up with this new figure but it doesn't mean that there's been an increase in MS cases. The way they went about finding the cases was different this time.

    From Multiple Sclerosis News Today (November 20):

    https://multiplesclerosisnewstoday.c...525ed-71286581
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Jeanie Z's Avatar
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    :) That is a better figure but I think they are way shy of actual cases. You hardly meet anyone who does not have a relative or friend with MS. Jeanie :)

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    Distinguished Community Member Howie's Avatar
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    Don't be too hard on them, they only missed it by 547,000.
    Roswell was a gift.

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    I think they still missed it, but they are getting a little closer. They didn't move off of that 400,000 for years.
    Virginia

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  9. #5
    Distinguished Community Member agate's Avatar
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    The study had its limitations:

    Among its limitations, the NMSS study excludes children, Native Americans, undocumented residents and prisoners, as well as people who seek treatment at alternative medical clinics rather than the healthcare insurance system.
    Those are pretty sizeable groups that were excluded, IMO.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member BBS1951's Avatar
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    Seems about right, one in 300

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    Distinguished Community Member jendie's Avatar
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    400,000 seemed like a low number to me and nearly a million sound more accurate.

    Jendie
    I've been a member of this forum during its different incarnations since I was dx in 9/98


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