Results 1 to 9 of 9

Thread: (ECTRIMS 2017) Revised McDonald criteria for diagnosing MS

  1. #1
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,718
    Blog Entries
    11

    Default (ECTRIMS 2017) Revised McDonald criteria for diagnosing MS

    This article in MedPage Today (October 26) summarizes a presentation at the recent ECTRIMS conference (Paris, October 25-28) about the revised McDonald criteria for diagnosing MS. The McDonald criteria have been in use for quite a while for establishing a diagnosis of MS, and now they are being revised to include the presence of oligoclonal bands in the spinal fluid--which means that anyone who is apt to be diagnosed with MS is likely to have a spinal tap (lumbar puncture) done as part of the diagnostic workup.

    https://www.medpagetoday.com/Meeting...846d0r5339616u
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  2. The following 4 users say "thanks"


  3. #2
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    5,859

    Default

    I never had a spinal tap for my dx, only an MRI. I don't know if I would agree to one, that's just too invasive.
    Roswell was a gift.

  4. The following 4 users say "thanks"


  5. #3
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,718
    Blog Entries
    11

    Default

    I never had one either. The neuro who diagnosed me wanted to spare me that experience, and I'm glad I got out of it. Some people sail through it but others find it pretty hard.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  6. The following 4 users say "thanks"


  7. #4
    Distinguished Community Member BBS1951's Avatar
    Join Date
    Oct 2006
    Posts
    2,202

    Default

    After my first attack, the MRI was clean, but the exam and history pointed toward MS. The neurologist said down with me and my husband and recommended a lumbar puncture. I am mediately said I did not want to do that. My husband, however, who is a very rational person and educated, said to me that I should do it. The doctor was in the room during this discussion

    So, a few weeks later I had a lumbar puncture. It came back with 1 o band in it or maybe it was two. I remember the doctor saying that the spinal fluid did not disconfirm MS nor did it confirm it. He then had the nerve to say to me that I had talked him into doing it. I wish my husband was in the room for that visit. That was when I knew I would never go back there again.

    And I didnít. I did get two university opinions after that and settled on a wonderful local neurologist to follow me.

    In any case, I was so frightened before hand that they gave me some kind of medication to relax me. I did not remember the puncture later on.



    Later on, a physician friend mentioned that if you ever have to have a lumbar puncture, he would have an anesthesiologist do it, not a neurologist. The Anesthesiologists use smaller needles and do 100 times more of these in their practice because it is used for so many procedures.

    I thought that was excellent advice and I pass it on to anybody who might be in the process of getting diagnosed and reads this.
    Last edited by BBS1951; 11-10-2017 at 08:13 AM.

  8. The following 4 users say "thanks"


  9. #5
    Distinguished Community Member nuthatch's Avatar
    Join Date
    Oct 2006
    Location
    California
    Posts
    961

    Default

    I also had a lumbar puncture done while in the diagnosis process. As I recall I had 3 obands in my spinal fluid. I had the procedure done under fluoroscope as an outpatient at the hospital. At the time docs were trying to decide if I had MS or Lupus. I had already tested (and still do to this day!) with a rather elevated ANA blood test (with speckled pattern), an elevated sedimentation rate, and I also tested positive one time for the Smith antibody. That was retested and came back neg. so it may have been a false positive. My brother had been diagnosed with Discoid Lupus a few years earlier, so his diagnosis muddled the waters for me. At the time, it seemed like there was a tug-of-war going on between a neurologist and a rheumatologist as to who would get me as a patient. What a huge hassle! The neuro won, lucky me.

    When I think back now, I find it interesting that both my brother's initial issue leading to his diagnosis, and my initial issue leading to my own diagnosis were immediately following instances of getting severely overheated. It sure makes me feel sun or heat has something to do with triggering these diseases.

  10. The following 5 users say "thanks"


  11. #6
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,718
    Blog Entries
    11

    Default

    Interesting, nuthatch. I had elevated ANA results too, about a year before the MS was diagnosed. I had no idea what that abnormal lab test result meant except that the doctor wrote me a note saying I needed to look into the possibility of "muscular rheumatism." That sounded harmless and I didn't follow up on that at the time.

    I hope that the neurologist you landed turned out to be a good doctor who gives enough attention to your care.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  12. The following 4 users say "thanks"


  13. #7
    Distinguished Community Member Cherie's Avatar
    Join Date
    Oct 2006
    Location
    Southeastern NE
    Posts
    1,269

    Default

    The other thing that is being included in the Revised criteria is that the presence of Cortical lesions now may factor in and not just juxtacortical lesions. I also have had two spinal taps. Both of which had lab errors and lost specimen. Both had elevated protein but no O banding done and when the lab was called and asked to rerun the test, they had discarded the specimen. Since I am allergic to local anesthetics, I had both done with no local anesthetic. Not that bad but not something I would waltz into lightly again.

  14. The following 5 users say "thanks"


  15. #8
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    2,282

    Default

    My first one was "lost." The second one was only tested for the medical things that are normally tested when looking for the source of fever. Neuro was livid.

    ANN
    There comes a time when silence is betrayal.- MLK

  16. The following 5 users say "thanks"


  17. #9
    Distinguished Community Member Cherie's Avatar
    Join Date
    Oct 2006
    Location
    Southeastern NE
    Posts
    1,269

    Default

    Quote Originally Posted by stillstANNding View Post
    This quote is hidden because you are ignoring this member. Show Quote
    My first one was "lost." The second one was only tested for the medical things that are normally tested when looking for the source of fever. Neuro was livid.

    ANN

    sorry to hear but it feels a bit better knowing I am not alone in that.

  18. The following 5 users say "thanks"


Similar Threads

  1. ECTRIMS/ACTRIMS conference, October 25-28, 2017 (Paris)
    By agate in forum Multiple Sclerosis
    Replies: 2
    Last Post: 11-01-2017, 09:23 PM
  2. Refining the criteria for diagnosing SPMS
    By agate in forum Multiple Sclerosis
    Replies: 1
    Last Post: 09-09-2016, 06:18 AM
  3. (OT) Proposed revised English spelling
    By agate in forum Multiple Sclerosis
    Replies: 53
    Last Post: 07-28-2016, 11:27 AM
  4. Possible blood test for diagnosing MS at onset
    By agate in forum Multiple Sclerosis
    Replies: 5
    Last Post: 01-14-2016, 03:28 PM
  5. Revised Preventive Measures to Reduce the Possible Risk of Transmission of CJD USA
    By flatfish in forum Creutzfeldt Jakobs Disease (CJD)
    Replies: 0
    Last Post: 06-11-2012, 03:25 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.