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Thread: What symptoms contribute most to PwMS perception of health?

  1. #11
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by SuzE-Q View Post
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    I also experience the same, people talk too loud and too fast. It's like cymbals being clashed right next to my ears. I even find myself rewinding the tv again and again to catch everything that's being said. Thank goodness for pvrs that allow for this now!

    I have to watch too and not just listen in order to combine lipreading with hearing it to aid in comprehending what's being said. No more multitasking while watching tv!

    Funny how almost every other symptom is a decrease in some function, this is a heightened sense. Of course, spasticity too is also an exaggeration of a function, not a loss.

    I think all 3 though are very close to being equally important to my perception of health, but these are the same 3 for me too.

    Thanks for your post. Well said. Helps me articulate the problem better when others describe...
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  3. #12
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    Suze-Q, I am the same as you about TV. Sometime I can follow every word and at other times I just can't take it in fast enough. It's like I need to go back and listen again to get everything. I want to say "Slow Down". But of course it is me and not the people talking. I could always follow everything before my MS symptoms got worse.
    Virginia

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  5. #13
    Distinguished Community Member SuzE-Q's Avatar
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    Quote Originally Posted by Virginia View Post
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    Suze-Q, I am the same as you about TV. Sometime I can follow every word and at other times I just can't take it in fast enough. It's like I need to go back and listen again to get everything. I want to say "Slow Down". But of course it is me and not the people talking. I could always follow everything before my MS symptoms got worse.
    Yes, I wonder if people are mumbling or talking faster sometimes or not articulating their words very well, or if it's just me. It's not all the time either.

    Laz, nice to know I'm not alone in this. Wonder what the explanation of neural dysfunction would be to explain THIS!

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  7. #14
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    There is also something that happens in the car. I "feel" like we are going way to fast. Scary. I say, "Hon, I know this is probably wrong but I feel like we are really going too fast."

    He says he will try and tells me our exact mph. It doesn't help.

    It's a once in a while thing. Anybody else have it?
    ANN
    There comes a time when silence is betrayal.- MLK

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  9. #15
    Distinguished Community Member agate's Avatar
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    Yes, and in fact the whole world just goes too fast for me.

    It's particularly noticeable in situations where I'm exchanging papers and information and maybe signing or initialing some of them. That's when I'm apt to leave important cards behind or drop my keys without realizing it. Later I realize that I really didn't get what was being said. There was too much going on, too fast.

    I have problems with action movies too. I don't follow what's happening.

    Movies with fast snappy dialogue are difficult but those with a lot of people running around (or car chases) are the worst.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  11. #16
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    Agate, I think that is because we only attend to the one thing. An MS Specialist put it this way: (paraphrasing) It is not that you don't remember but that your brain doesn't record the information.

    Like in the thread where we are talking about pills. She said it is not that we "forgot" whether we took them or not but that our brain didn't record it so it's impossible to remember.

    ANN
    Last edited by stillstANNding; 09-14-2017 at 08:28 AM.
    There comes a time when silence is betrayal.- MLK

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  13. #17
    Distinguished Community Member agate's Avatar
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    I think you're right.

    If someone tells me something that I know is going to be very important, I sometimes get so wrapped up in thinking of how important it is that I don't get what the person said. I wrack my brain afterwards and usually have to ask for a repeat or find some other way of getting the information I didn't receive.

    I might hang up the phone after this kind of conversation and wonder, "Now what did that person say?" It's just not there. I didn't forget it. I never got it in the first place.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #18
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    I had difficulty in crowds because my hearing was so bad. And watching tv. I couldn't distinguish voices from other noises, especially music, so missed most of the dialogue. Once just got hearing aids that was much better. My neurologist swears the hearing loss is not related to MS. Several friends....who do not have MS ...agree with me that people talk faster these days, particularly young people....I'm forever telling people to slow down, repeat themselves...so I wonder if that is more age related?

    I've never experienced much pain with MS, but was physically disabled early on, and when I lost bladder control I knew I was moderately disabled. Now I suppose it's worse than that.

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  17. #19
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    I thought of this thread this morning while laying in bed unable to sleep. The bottom of my feet were burning so bad, I just kept turning over and over thinking maybe I could get more comfortable, but was unable to. I have had the creepy/crawly stuff for years and years, but the bad burning has started lately and I can't get away from it. I don't know anyway to get it to stop.
    Virginia

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  19. #20
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    Virgina, I have been treated for that in the past. One way was a short course of steroids or a day or two of IV steroids. The other way was taking nortriptyline or neurontin (can't remember which) for a number of months.

    I am sorry this symptom is keeping you awake.

    ANN
    Last edited by stillstANNding; 09-14-2017 at 08:33 AM.
    There comes a time when silence is betrayal.- MLK

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