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Thread: Maybe one reason why people wait in limbo for so long before MS is diagnosed

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    Distinguished Community Member agate's Avatar
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    Default Maybe one reason why people wait in limbo for so long before MS is diagnosed

    I won't post a link to this because the doctor is named but there's an article in the Denver Post (August 22) about a neurologist who was practising in Colorado who is being sued by two women who say he misdiagnosed them with MS and treated them for MS for years. They've filed federal negligence lawsuits and are seeking compensatory damages.

    He happens to own the MRI facility where they had many MRIs. One had 23 MRIs in 5 years, all showing no change over time.

    I looked up the doctor on several of the sites where doctors are rated. He has good credentials--over 30 years in practice, trained at Northwestern University hospital, board-certified, and claiming to specialize in MS.

    One of the women was on Tysabri for 7 years.

    When there is this danger of being sued if a doctor misdiagnoses MS, maybe it's not so surprising that many neurologists are reluctant to diagnose MS?

    And you have to feel sorry about these two patients--and there are said to have been others in this doctor's practice.

    To go for years under the impression that you have a serious disorder requiring treatment that has severe risks--you can't be too careful in choosing your doctors.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.


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    Distinguished Community Member Frog42's Avatar
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    I do wonder why he didn't test for anything else. Did his ownership of the facility have anything to do with it? I definitely feel sorry for those women.


    Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

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    Distinguished Community Member SuzE-Q's Avatar
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    He certainly ordered a lot of MRIs!

    http://www.denverpost.com/2016/08/22...ple-sclerosis/

    (not sure why you didn't want to post the link, Joan, it's published in a newspaper, and the court filings in the lawsuit providing the info are public record.)

    (while mad, I think I'd be relieved not to have MS, only regular "aging"!)
    Last edited by SuzE-Q; 08-23-2016 at 12:58 PM.

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    Distinguished Community Member BBS1951's Avatar
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    .....................l...
    Last edited by BBS1951; 08-23-2016 at 01:01 PM. Reason: Posted before I saw the news article

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    Distinguished Community Member BBS1951's Avatar
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    OMG I know of this neurologist. He practices in the same town as my neuro practices in here in Florida.

    ...I have no public comment to make....

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    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    OMG I know of this neurologist. He practices in the same town as my neuro practices in here in Florida.

    ...I have no public comment to make....

    This was one reason I didn't want to post the link. Since the names of the patients and the doctor were given, and the legal situation is still pending, I was a little uneasy about giving that much information here. But since SuzE-Q didn't mind, and nobody has complained, it's probably OK.

    Yes, 23 MRIs in 5 years sounds extreme--over 4 a year???

    As I understand it, the doctor transferred his Colorado practice to another doctor, who started looking into the previous doctor's records and raising some questions.

    Vicky, it sounds as if one motive he might have had for misdiagnosing these people may have been so that he could order more MRIs to be done by the facility of which he was an owner.

    Or maybe he just wasn't adept at diagnosing MS.

    Imagine having gone for all of those Tysabri infusions... One day a month taken out of your life, year after year, and probably with recovery time after that.
    Last edited by agate; 08-23-2016 at 03:09 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member SalpalSally's Avatar
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    What a skunky thing to do!
    Love, Sally


    "The best way out is always through". Robert Frost







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    Distinguished Community Member agate's Avatar
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    And going through so many MRIs! I'm fairly sure that at some point, maybe at MRI #5, I'd have asked whether all of these MRIs were needed and I might have refused any more of them, but quite a few people are inclined to do whatever the doctor says needs to be done.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member BBS1951's Avatar
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    Dr Weiss has been practicing in Palm Bay Florida for about 30 years. Vail was his second office.

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    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    Dr Weiss has been practicing in Palm Bay Florida for about 30 years. Vail was his second office.
    I've edited an earlier post so it will be more accurate.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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