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Thread: Possible down time for BT within 2 days

  1. #41
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    ((((((Alex)))))) ~

    I'm so very sorry to hear about your illness. I have missed you and wondered how you and your partner are, looking for posts from you. You are in my prayers.

    There has been activity on some of our forums since you last posted in June, although not in Chronic Pain. The Spinal Disorders forum has had some returning members visit a few times, including Mark N. Mark indicated that he stopped posting, because the forum was inactive.

    The forums became inactive, because people left for whatever reasons. Then, for whatever reasons, when they return, they are astonished that the forums are at a stand still. We can't exactly say, "Hey, I left, but why didn't everybody else stay?"

    Some members left and never returned. Some members left and drop by every blue moon. It's difficult to attract new members, when they see no activity in the forums of their choice/need.

    I try to welcome every new member, and thankfully others have joined the Welcome Wagon, but there aren't enough of us to garner the trust and meet the needs of the new members. I can't really help a person with a CSF leak, or a shunt, or a spinal disorder, or a chronic headache, or any of the other neurological areas, with which I'm not familiar/have no experience. And the members, who could respond and be helpful, are no longer here.

    I'm a grieving parent, and I fought to keep the Coping with the Loss of a Child forum, even though it has no activity. I wanted it to be there, in case a grieving parent needed support. Every day, I see "1 Viewing" the forum, but that person never registers and posts. I even wrote a post to "1 Viewing" to let these guests know that I may be only one person, but I understand their grief journey and am here to share it with them. And where there are two of us sharing, more will feel comfortable to join us.

    We also have new members, who only post one time, get all of the information and support they seem to want or need and then never return to provide an update or say "thank you."

    We recently had a new member post, who thanked us for our help and support and then indicated that she'd found a Facebook group for her specific need and recommended it to others, who are in her situation.

    BrainTalk membership began declining, when Facebook was implemented. Evidently, that is where many of our Child Neurology members hang out now. I strongly suspect that is the case for many of our other forums. We can't really compete with Facebook. Our forums are old school now.

    I hope that you won't let the lack of activity deter you from posting, Alex. I'm here for the duration, and I care about you. I'll always respond to your posts.

    Blessings upon you ~

    Love & Light,

    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  3. #42
    Distinguished Community Member agate's Avatar
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    Oct 2006
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    alex44, it's very unfortunate that so many people who looked to this place as a source of companionship and support are being disappointed nowadays.

    I'm sorry that you are among them and very sorry about your illness.

    I can only echo what Rose said. Any number of people have come along with "Where is everybody?" posts in recent years, but as she indicated, if nobody is here, nobody will be here.

    If a few people committed themselves to helping to make this place more active, it just might work.
    Last edited by agate; 09-14-2016 at 01:51 PM.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous

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