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Thread: I start IVIG

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default I start IVIG

    Neuro approved me to start IVIG this morning. A 4-6 hour infusion every two weeks, then three weeks, and then every four weeks.

    Side effects range from none to dizzy, fever, pain in extremities, nausea.

    I vote for none,

    Will take work off Minday and Tuesday. My surf buddy volunteered to take me. She is an angel...

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  3. #2
    Distinguished Community Member agate's Avatar
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    This is such good news! I hope you'll let us know how it goes.

    They don't know yet if it will be 4 hours or more, maybe even 6 hours? I hope you'll be comfortable and able to do something for distraction.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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    Distinguished Community Member Lazarus's Avatar
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    Great! Life will be better when you are storming through the world again!
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    BBS, your insurance was prompt - a very good thing. I hope all goes well and I really liked what Linda had to say about storming through the world.
    Virginia

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    I hope this goes well for you.

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  11. #6
    Distinguished Community Member SuzE-Q's Avatar
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    I hope you get a double benefit!

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  13. #7
    Distinguished Community Member Sunshine's Avatar
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    Thank you :) I plan to look at the infusion center today so I know what am up against re noise, crowds, ugly vs pretty surroundings, hectic vs peaceful. I went to the hospitals radiology place a few months ago and it was laid out like a jail, just awful and dehumanizing.

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  15. #8
    Distinguished Community Member SalpalSally's Avatar
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    Great for you BBS! Hope it works for you!
    Love, Sally


    "The best way out is always through". Robert Frost







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  17. #9
    Distinguished Community Member Sunshine's Avatar
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    I went and looked. I think there is room for improvement to make it less institutional. Just a big open room with a bunch of lazy boys chairs and people looking forlorn and invisible. Zero privacy...At least there was no blaring TV and it wasn't freezing cold.

    Am hoping the technicians and nurses are very skilled and kind :)

    Beggars cannot be choosers and I am grateful this will be paid for my Medicare and BCBS supplementary insurance. Very grateful. I start my engine at 9:00 a.m. Monday for the 4-6 hour infusion.

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  19. #10
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    If you get bored and feel like talking you might find some interesting people to talk to.

    I know you are married and not in the market, but I had a single girlfriend who was getting a Tysabri infusion. While sitting there she and a man began to talk. This was quite a number of years ago and they are still dating. Your topic of conversation would just need to be different.

    Personally, I would take a book and just try to enjoy the quite time. Maybe they will let your friend who is taking you stay with you. The first time around that might serve two purposes, to occupy your time and to help with the jitters that anyone would have.
    Virginia

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