Earth Mother 2 Angels, thank you for responding.
My sons hormones are off. His body isnt producing growth hormones so he has to take a daily shot of hormones. We took him off the shot for 2 weeks to see if they were causing the headaches...but they were not...which we thought would be the case since he has been taking those shots for almost 3 years & nothing has changed. We haven't had any other hormones checked specifically...He does blood work every 4 months. I would think something alarming would show up in those. But i will ask about this...because at this point anything is possible.
Scar tissue has been ruled out. Allergies & sinus problems have been ruled out by an ENT. I have asked about seizures but unless there are visible signs they wont do an EEG which makes me mad...i mean it is my money & my child...whats it going to hurt.
We went out of state to a different children's hospital and the neurologist there says he thinks it is another CSF leak...which would make sense. My son did have a leak after this first brain surgery. It feels like this might be it...but the Neurosurgeon re-reviewed his brain MRI and couldn't see a leak. I guess they are really hard to find on an MRI. So I begged them to do a spinal MRI and put the dye in his spine to see if this could be it. That appt is scheduled for April 11.
My son has also meet with a couple holistic doctors and they said his hips were a little off but after 3 adjustments nothing really helped. He does love getting massages and the peace he feels there. He has not suffered any kind of trauma to his brain. But all the headaches started as he was getting over alittle cold...which as i have read online could be a trigger to these never ending headaches.
Hopefully something gives soon & we can find answers or the headache will break
Thanks jpittman10
My sons hormones are off. His body isnt producing growth hormones so he has to take a daily shot of hormones. We took him off the shot for 2 weeks to see if they were causing the headaches...but they were not...which we thought would be the case since he has been taking those shots for almost 3 years & nothing has changed. We haven't had any other hormones checked specifically...He does blood work every 4 months. I would think something alarming would show up in those. But i will ask about this...because at this point anything is possible.
Scar tissue has been ruled out. Allergies & sinus problems have been ruled out by an ENT. I have asked about seizures but unless there are visible signs they wont do an EEG which makes me mad...i mean it is my money & my child...whats it going to hurt.
We went out of state to a different children's hospital and the neurologist there says he thinks it is another CSF leak...which would make sense. My son did have a leak after this first brain surgery. It feels like this might be it...but the Neurosurgeon re-reviewed his brain MRI and couldn't see a leak. I guess they are really hard to find on an MRI. So I begged them to do a spinal MRI and put the dye in his spine to see if this could be it. That appt is scheduled for April 11.
My son has also meet with a couple holistic doctors and they said his hips were a little off but after 3 adjustments nothing really helped. He does love getting massages and the peace he feels there. He has not suffered any kind of trauma to his brain. But all the headaches started as he was getting over alittle cold...which as i have read online could be a trigger to these never ending headaches.
Hopefully something gives soon & we can find answers or the headache will break
Thanks jpittman10
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