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Thread: Hello from England

  1. #1

    Default Hello from England

    My name is Mark. I stumbled across this site when looking for some info regarding my condition. I'm 48 now and had a Colloid Cyst of Third Ventricle removed in August 2014.
    I'm ok. I get tired quite easily but went back to work full time 3 months after my operation but I have noticed recently that I have been suffering mild memory problems. This is the first time I have noticed it and I am keeping calm about it.
    Apart from these slight problems and the fact that when I am dehydrated, the 'dints' or 'hollows' on my head where I had the craniotomy become much deeper, I haven't had any issues.
    I have the occasional anxiety attack but I guess that's to be expected after going through brain surgery.
    I'm hoping I can help others and also take comfort from others too.

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  3. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    Thumbs up

    ((((((Mark)))))) ~

    To BrainTalk!

    I'm glad that you found us! We're a friendly, supportive group of folks ~ welcome!

    Unfortunately, I have no experience with colloid cysts, so I can't be of much help to you in that regard.

    Are you receiving any kind of therapy? I'm wondering if therapy, such as mental exercises, might help you with your memory issues. Activities to stimulate your brain to remember.

    Do you make sure that you stay well hydrated? You might try making a home made electrolyte drink (Google and you'll find various recipes).

    How do you handle your panic attacks? Have you considered learning meditation or mindfulness? Perhaps Tai Chi or Yoga might help?

    I hope that others will stop by to welcome you and offer support.

    Please let us know how you are doing.

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

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  5. #3
    Distinguished Community Member agate's Avatar
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    Hi Mark and

    I've been on the MS board here since 2001 but I'm afraid I know next to nothing about your condition. Brain surgery of any kind can't be easy, and my impression is that many neurological conditions take a long long time to recover from or adjust to.

    It hasn't been a year and a half since your surgery. With more time I hope you'll see some improvement in the memory problems and the anxiety attacks.

    Of course you're anxious. Getting over brain surgery would probably make anyone anxious. Even after it's over you have to recover from the stress of the ordeal you've been through.

    I like Rose's suggestions--and maybe there's a prescription that will help with the anxiety. The neurologist I've been seeing for the last 6 years recommends Xanax and I have some on hand but haven't tried it out yet.

    If there was some information you're looking for in particular, please just ask. Somebody here might be able to help you find it.

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #4
    Administrator/SYSOP Mike Weins's Avatar
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    Oct 2006
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    Hi Marko welcome to BT :)
    Question: Why can't I post links or pictures?
    Question: Why can't I have a signature, avatar, or profile picture?
    Question: What's wrong with my account?

    Answer: You are in the "registered users" user group. This group is very limited in what it can do. This will annoy spammers to no end Just keep posting once you have been registered for 30 days and have made 11 posts your account will be "unlocked".

    It's really easy to put someone on ignore and it's strongly recommended that you do so with people who's posts you don't like.

    Step 1 - log in
    Step 2 - click on the "settings" link
    Step 3 - click on the "edit ignore list" link on the left side of the screen
    Step 4 - type (or paste if you copied and pasted it) the username of the person you want to ignore
    Step 5 - click the "ok" button on the right of the screen

    Easy peasy and will lower your blood pressure. One important note though, this won't hide quoted posts. It's an oversight on the developers part and it's not an easy thing to "fix." So if someone quotes someone you have ignored, you'll see the quote.

    Alternatively when you click on a person's name and view their profile page, underneath their avatar, there is a option that says, "Ignore this person". Click that link and then click the yes button.

  8. #5
    Distinguished Community Member
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    between a rock & a hard place


    Good day Marko. Glad you found us. We are a group of friendly & helpful people. Peace my friend
    The early bird catches the worms~~~~~that means, I wake up early and have worms. lol

    That's my son's words of wisdom to me! ! lol

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  10. #6
    Distinguished Community Member
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    Jan 2009
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    Welcome to Braintalk! I don't know anything about your condition at all either. I have a neurologic condition called Cerebral Palsy. You can see a description of Cerebral Palsy on my website here see the part of the page that says "more". I have had my condition all my life and my brain is still healing and changing after the initial injury. Agate is right. Your brain is likely just beginning to recover. For many people it can take 4 years or more for the brain to bounce back but it often does. Have faith in that! Anxiety attacks are common after brain injury or trauma. Your body probably views the surgery as a trauma hence the attacks. The memory issues are also common as is the fatigue when dealing with the brain. Give it time. Be patient with your brain. In the meantime we are here for you always. You may want to ask your docs about brain supplements that help with memory. Please keep yourself hydrated!!! If I get dehydrated I have bowel issues. Being dehydrated can make you quite sick so be careful!
    Last edited by funnylegs4; 01-14-2016 at 02:51 PM.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films!

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