4 years

[Bill[uk]]

New York...

loved it loved it loved it.........

[Bill[uk]]

9 Years

9 Years anniversary

So how am I doing now ?

pretty good I have to say. A lot of my symptoms [as mentioned in my previous updates] have minimised at last and don't concern me so much. They are still there but don't concern me as much as they used to,now I would consider them just minor irritations.

I still keep a diary,but its mainly for work (drug & alcohol testing) which keeps me busy ,too busy on some occasions but I use the busy times to test my self to see what I am capable of still,but then usually pay the price of some fatigue after but I use this as a barometer of my healing.

Still don't feel 100% me but close enough.Roll on to my next update which will be a decade, which I still can,t believe, 10 years......wow...

But at least I have all my diaries,mine and others post on this forum and my annual updates to help me reflect on and to give some perspective of my progress and how far I have come since those dark early post-op days.

Hope everyone is doing good

Bill[uk]

[CCSurvivor]

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9 Years

9 Years anniversary

So how am I doing now ?

pretty good I have to say. A lot of my symptoms [as mentioned in my previous updates] have minimised at last and don't concern me so much. They are still there but don't concern me as much as they used to,now I would consider them just minor irritations.

I still keep a diary,but its mainly for work (drug & alcohol testing) which keeps me busy ,too busy on some occasions but I use the busy times to test my self to see what I am capable of still,but then usually pay the price of some fatigue after but I use this as a barometer of my healing.

Still don't feel 100% me but close enough.Roll on to my next update which will be a decade, which I still can,t believe, 10 years......wow...

But at least I have all my diaries,mine and others post on this forum and my annual updates to help me reflect on and to give some perspective of my progress and how far I have come since those dark early post-op days.

Hope everyone is doing good

Bill[uk]

Congratulations Bill! I've just read through your yearly updates for the first time...I'm on year 15 since my open craniotomy in 2001. I experience a similar journey - took a while for my brain to settle down and get focused, and keeping myself challenged with "thinking" (but not overdoing it) did help me too. I went back to school and kept learning. Routines and jobs became my touchstones. I would say now I'm smarter and sharper than my pre-op self.

Unfortunately my CC grew back, but we are monitoring it. I'm appreciative of seeing your reflections today because I have been weighing whether I advocate to have the cyst removed electively to prevent the risks of hydrocephalus. My main concern is getting treated quickly enough, by a seasoned CC surgeon. Your yearly posts have reminded me it is a long journey back to 100%, even with a minimally invasive approach, and not to take the post-op work ahead lightly.

Thank you for sharing. Glad you are doing well!

All the best,

CCSurvivor.

[Bill[uk]]

"I'm appreciative of seeing your reflections today because I have been weighing whether I advocate to have the cyst removed electively to prevent the risks of hydrocephalus.

Your yearly posts have reminded me it is a long journey back to 100%"




Glad to help, this is the precise reason I post annually,

good luck with your journey.....


Bill[uk]

[Bill[uk]]

10 Years.


Hi all, my last post 10 years after my first.


Wow, what a trip.

I think I have reached my "level" now and "fairly" comfortable with it. Wouldn't want to go through it again in a rush though.

I am functioning at a decent level now and hope it stays that way.

Thankyou all so much for guiding me through this journey, I will never forget you,

you know who you are.......


Keep helping each other,the world needs people like you......



Best wishes and keep the faith.

Bill[uk]