I'm pretty sure that Kathleen has no appointments this week!(unless I forgot to write one on the calender) That's amazing! Last week she saw her surgeon for the cecostomy and she changed her mic-key button. We don't have to go back for 6 months. We also saw the orthotist and she made the change on her KAFO ( a soft plastic part on her ankle) hoping ot hold the foot in the brace. She wore it Sunday bowling for about an hour. Her heel was pretty red and a bit swollen. She refuse to put it back on. she complained a lot about her left leg after that. I don't think it held her foot in which means it moves in and out of the brace. We'll try again if I can get it on her.
Last Friday we had a dinner to go to for Kelly. She got an award for her volunteer work with The Bus Stop Club. It's an organization for siblings of children with disabilities. She runs their activities. Kathleen danced for hours! She especially loved dancing with another mom we met (total stranger) who turned out to be an OT and has a daughter with cancer. She really gets a gut feeling about people and either loves them at first sight or keeps her distance. Here's a couple pictures from our fun night out. A family picture, a picture of the mom she danced the night away with, and one of her and her brother Patrick.
Mary Grace
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Last Friday we had a dinner to go to for Kelly. She got an award for her volunteer work with The Bus Stop Club. It's an organization for siblings of children with disabilities. She runs their activities. Kathleen danced for hours! She especially loved dancing with another mom we met (total stranger) who turned out to be an OT and has a daughter with cancer. She really gets a gut feeling about people and either loves them at first sight or keeps her distance. Here's a couple pictures from our fun night out. A family picture, a picture of the mom she danced the night away with, and one of her and her brother Patrick.
Mary Grace
P1010789.jpgP1010784.jpgP1010776.jpg
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