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    Hebrew is a snap to read, despite different...

    Hebrew is a snap to read, despite different letters, and reading right to left. It pretty much reads exactly how it’s spoken.
    Japanese is easy to learn to speak, but I didn’t try to learn to read...
  2. I wonder if Swank was onto something? You recall...

    I wonder if Swank was onto something? You recall his hypothesis, and then diet, was that lipids leaked out of the capillaries (?) in the CNS and that it caused inflammation and attack of normal CNS...
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    Sweet photo :)

    Sweet photo :)
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    Swam 1/2 mile, cooked a homemade creamy lentil...

    Swam 1/2 mile, cooked a homemade creamy lentil soup, will rest now. Decided against surfing tomorrow: too much other stuff going on this week, want to get a little stronger....
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    Swam 1/2 mile this morning. 55F air, 86F pool....

    Swam 1/2 mile this morning. 55F air, 86F pool. Should be warmer tomorrow.
    Legs are spastic today ...
    Friends want to surf Saturday
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    Yes, it def rings a bell with me ANN...the whole...

    Yes, it def rings a bell with me ANN...the whole day is like that: Certain times of day, gotta get the stuff done before the symptoms crash in.
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    My sister also takes some sips of vodka along...

    My sister also takes some sips of vodka along with her inhalers: it settles her down, as anxiety about not breathing can worsen her attack. I dont know if there is science behind that though.

    Good...
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    Albuterol made my heart race. So I switched to...

    Albuterol made my heart race. So I switched to Xopenex: Perfect. Now it comes in a generic, but I cannot recall its name. WOrks great. Its a rescue inhaler I use it daily with my Spiriva Respimat and...
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    SPS has been kicking my butt, but I still swim...

    SPS has been kicking my butt, but I still swim nearly every day. Then rest....
    It is so hard to cope with such remarkable pain and loss...Trying hard. Embroidery takes my mind off of the negative...
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    You are downright Heroic Agate! I will try harder...

    You are downright Heroic Agate! I will try harder :)
    40F outside, think I will skip the morning swim— th air is just too cold to get out of the pool and into the house...maybe walk more, like agate....
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    Swam in the cold...cooked. Resting...

    Swam in the cold...cooked. Resting...
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    I am sad to hear of your loss.

    I am sad to hear of your loss.
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    Two days since Laz posted here... Too soon to...

    Two days since Laz posted here...
    Too soon to worry?
  14. I might like to drive it, but at slow speeds,...

    I might like to drive it, but at slow speeds, like the speed of a normal walker in a store. Not at 24 mph!
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    My DH was out of town this morning, back later...

    My DH was out of town this morning, back later today. My friend spent the night just in case, and she consented to supervise a swim. 1/2 mile. It will be very chilly tomorrow, and might not swim...
  16. The Donut Hole is closing, another gap opens up without Congressional Action

    https://www.nytimes.com/2020/01/17/health/medicare-drug-costs.html
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    I am starting on this kit:...

    I am starting on this kit:
    https://www.amazon.com/gp/product/B07WMM3DTS/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1

    Its cheap enough. And, if I continue to like it, I can branch out, and...
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    Today I started to learn to em broidery from a...

    Today I started to learn to em broidery from a kit I bought on amazon.
    I was pleasantly surprised to see how my main receded and my constant worry stream of thoughts disappeared. This may prove to...
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    You got a lot done Virginia :)

    You got a lot done Virginia :)
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    My friend has amazing skin, but she grew up in a...

    My friend has amazing skin, but she grew up in a cold climate with no sun. Mine is mottled from sun
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    Also, I should add, my asthma is only accompanied...

    Also, I should add, my asthma is only accompanied by wheezing when it gets really bad. Otherwise, it is a constant hacking cough.

    The sarcoidosis, which is stable, creates a feeling of wet mucus...
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    I am so grateful for your care and concern. It...

    I am so grateful for your care and concern. It warms my heart that you think about how to help me. The main help I need now is rides, occasional help cooking, and your ever present kindness.
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    My immunologist puts me on a short course of pred...

    My immunologist puts me on a short course of pred after these types of symptoms and history and it clears up the coughing after a bout of antibiotics doesnt do the trick.

    You have HBP? Some meds...
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    I swam 1/2 mile 28 minutes. During the day, I...

    I swam 1/2 mile 28 minutes. During the day, I walked 7 minutes straight, and then in fits and starts to get the dinner cooked etc. Lots of time lying down.

    Tomorrow should be less cooking...
  25. Disability Disaster in the making: Law Proposal by politicians

    https://www.nytimes.com/2020/01/16/opinion/trump-disability.html?action=click&module=Opinion&pgtype=Homepage
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    You all have been busy :) So jealous of cat...

    You all have been busy :)
    So jealous of cat people. They look like a perfect pet. Were it not for allergies/asthma to indoor pets, even birds, they would ge a perfect solution to loneliness. And...
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    IVIG today. All day long...

    IVIG today. All day long...
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    View Post

    Is there a monthly fee, or just a fee to “buy” the audible? And do you have to listen to it on your iPad?
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    How are you feeling this morning Virginia?

    How are you feeling this morning Virginia?
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    Agate, how do you get audio books with zero sound...

    Agate, how do you get audio books with zero sound effects. Just reading. Idon’t mind voice inflection, but do not want music or sound effects.
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    I was so mad that they made you wait so long to...

    I was so mad that they made you wait so long to change you.
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    I curse physics when this happens. It’s bad enough to be so ill, it only seems fair that physics would occasionally cut us a break and not follow its own rules.
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    The politics in our nation is so frightening, and...

    The politics in our nation is so frightening, and vile right now, that I limit mylsef to reading the news in the morning, and then nothing else.
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    Today I swam 1/2 mile 25 minutes 54F air, 86 pool.

    Today I swam 1/2 mile 25 minutes 54F air, 86 pool.
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    I stopped as soon as I was able to start to swim...

    I stopped as soon as I was able to start to swim again.
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    Good visit with neuro. He has increased ativan....

    Good visit with neuro. He has increased ativan. LEts see how that does.

    Today, urologist squeezed me in an i foun a ride with a good friend. They insisted I see the doc, not just come in and get...
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    Oh Nuthatch— how truly awful for you...
    Do you think you had the flu that morphed into pneumonia, not an uncommon course...regardless, it must be nice to be home....So sorry you have been up against...
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    I have one of these that I used for my arms for...

    I have one of these that I used for my arms for elevating my heart rate, before I was able to swim at all. It was helpful, but awkward..better than nothing though.
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    This looks like the one I bought for my arms when...

    This looks like the one I bought for my arms when I wasn’t able to even swim, in order to elevate heart rate. Its awkward for arms, but better than nothing...
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    Virginia, that’s a lot of activity, at least from my armchair :) I gave up makeup decades ago—- part of my feminist statement I guess—fixing my hair means I put my comb through it. :)....oh well, ......
  41. Thread: Undecided

    by Sunshine
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    Yes to PT— it def helped me. You can also get in at home if necessary.

    I don’t know enough about Cellcept...Ocrevus and Rituxan are worth asking about though.
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    Yes, I am on a preventive. Daily...

    Yes, I am on a preventive. Daily Nitrofurantoin...its not 100% guarantee of no infection.

    Sure feels like a UTI...

    I have Keflex in the house, but docs frown on self medicating. So, I will try...
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    Jeanie, We cannot compare ourselves to each...

    Jeanie,
    We cannot compare ourselves to each other. Our disease(s) impact each of us differently. Example, if I compared myself to ANN’s or Laz’s activity, I would feel like a failure!

    I def echo...
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    In a funk here. Seeing neuro Monday. Saw...

    In a funk here.
    Seeing neuro Monday. Saw Urologist Friday for urine culture and went to Radiology for Sitz Mark test to monitor passage of food through the canals...follow up test for that...
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    Resting after the 1/2 mile plus swim....

    Resting after the 1/2 mile plus swim....
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    Good job Virginia!!! I started at age 60. But...

    Good job Virginia!!!

    I started at age 60. But I was swimming a mile daily at that point and thus in good shape...
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    Yes,I did go surfing yesterday with 8 friends and...

    Yes,I did go surfing yesterday with 8 friends and DH who took me and was my emergency manager :)
    It was cold outside for FL, 56F, but sunny and the water was 76 which felt warm in comparison. Of...
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    Keep on Moving: January 2020

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
  49. I am supposed to go surfing tomorrow morning, January 1, 2020

    Packed and ready to go. The bowels will determine how late until I can get into the car,,,,geesh... My crew begged me to go....might as well see what happens. It will be almost flat day, not hot, not...
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    Virginia: Please check in...worried about you,...

    Virginia:
    Please check in...worried about you, am I.
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    Amidst all of this suffering, we have these...

    Amidst all of this suffering, we have these wonderful photos of nuthatches grandchildren :) Thank you for that
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    Chocolate for everyone :)

    Chocolate for everyone :)
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    Have been swimming 1/2 mile every day except IVIG...

    Have been swimming 1/2 mile every day except IVIG day. Even in pain, still able to swim...The SPS pain si sometimes overwhelming emotionally and physically.
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    Out of stubbornness, I swam 1/2 mile, Plus, 27...

    Out of stubbornness, I swam 1/2 mile, Plus, 27 minutes.It was warm outside and I had a newer warm neoprene jacket on, less chilled.

    I have had pain all day, from SPS. Waiting for the 2nd Ativan to...
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    I am not doing well... much pain...it infects my...

    I am not doing well... much pain...it infects my whole spirit. ...
    Tomorrow is IVIG all day. Next Monday is Neuro quarterly visit.
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    Oh Virginia, a tough week for you for sure. ...

    Oh Virginia, a tough week for you for sure.

    This is your second UTI in a month, right? Maybe the first one wasn’t killed off?
    Maybe time to ask , insist on, a referral to a urologist?

    I feel...
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    I spent plenty of time lying down, resting today— these meds really drug me out. .. but I got my 9 minute walk inside the house and porch, and spent a lot of time on my feet getting supper ready.
    ...
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    That is a gorgeous song. I have no clue what it...

    That is a gorgeous song. I have no clue what it means other than its pertaining to love, but the music is wonderful: You fall into it.
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    My GYN shows my T scores just tipping into the...

    My GYN shows my T scores just tipping into the osteoporosis range. She thought of an IV treatment (Reclast?) but said, was reluctant in that it would be in my body 6 to 12 months, and my disease...
  60. View Post

    Interesting paper on the impact of lung irritation (such as smoking) as breaking down the blood brain barrier and allowing MS to enter the CNS.

    The authors do not implicate nicotine as teh bad...
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    Swam 1/2 mile, 27 minutes. Plan to do the walk...

    Swam 1/2 mile, 27 minutes. Plan to do the walk this afternoon too. Trying to walk more this morning...
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    There is a newer med which I think is the only...

    There is a newer med which I think is the only one that BUILDS bones, not just stops deterioration. Cannot recall the name of it. Though. Its IV, maybe twice yearly?
  63. People do the best that they can do. For many, it...

    People do the best that they can do. For many, it falls short of the mark, but it’s the best they can do with a situation they are unequipped to handle.

    Just say, “Thankyou for your kindness. In a...
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    I swam 1/2 mile. Rested all morning interspersed...

    I swam 1/2 mile. Rested all morning interspersed with cooking a nice dinner for today and tomorrow for DH. Then I went on a 10 minute walk with outdoor rollator. Watched TV an hour to lie down, then...
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    ANN, the airline will wheelchair you from door to...

    ANN, the airline will wheelchair you from door to door. Call ahead for your next trip and tell them you need the service. It is free. They get you at the door to terminal, then they take you through...
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    Wow Virginia! Such effort and perseverance! I...

    Wow Virginia! Such effort and perseverance!

    I did my 1/2 mile swim 25 minutes today after a 3 am bad spasm lasted only 10 seconds. Then showered, hung up the wet swim clothes to dry out, made a...
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    I swam 1/2 mile, 27 minutes. I did my one load of...

    I swam 1/2 mile, 27 minutes. I did my one load of laundry, I did my 9 minutes walking around the house, I cooked fish and I made roasted cauliflower to go with it.

    The rest of the day was...
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    I have been known in the past to bring a box of...

    I have been known in the past to bring a box of local oranges for “Dr. so and so and her staff” They very much appreciate it.
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    I swam the 1/2 mile 26 minutes. Stopped because...

    I swam the 1/2 mile 26 minutes. Stopped because there was supposed to be a rocket launch, but too cloudy even if it had gone up...

    Trying to walk as much as I can without spasms.

    Cutting back...
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    I did my usual swim today. The Ativan has become...

    I did my usual swim today.
    The Ativan has become less effective, making the day much harder....
  71. View Post

    Cataract surgery is a walk in the park if it’s done by a competent ophthalmologist. Competent being the keyword...The hardest part is finding the rides.
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    https://academiccommons.columbia.edu/doi/10.7916/d...

    https://academiccommons.columbia.edu/doi/10.7916/d8-1pjh-mr08

    Case report of treatment resistant SPS
  73. New Case report on Treatment resistant SPS

    https://academiccommons.columbia.edu/doi/10.7916/d8-1pjh-mr08
  74. What a great outcome for you. And now, Ms is...

    What a great outcome for you. And now, Ms is center stage.
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    ANN: Can you show me a picture or link to a wrist...

    ANN: Can you show me a picture or link to a wrist strap phone holder: Mine has to go in a case I wear around neck/shoulder and I hate how it pulls on my neck, despite being relatively light.
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