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  1. Thread: RIP Catdancer

    by agate
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    1,256

    Thank you, Parsi. It's a lovely photo and so nice...

    Thank you, Parsi. It's a lovely photo and so nice that people who never had a chance to see her can see her.

    Her husband wrote this on her Facebook page yesterday:
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    An encounter with a sunflower turns into an...

    An encounter with a sunflower turns into an encounter with a bee! Lifting a bee out of a sunflower takes courage, it seems to me.

    You probably made that little boy's day!
  3. Thread: October Chitchat

    by agate
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    1,230

    stillstANNding, we may have gone into this before...

    stillstANNding, we may have gone into this before but I wonder if having a wheelchair at the airport would make things easier for you?

    Keeping moving is a great idea but looking back on the time...
  4. There was this recently (at the annual ECTRIMS...

    There was this recently (at the annual ECTRIMS conference)--"ECTRIMS2019: Is Rituximab a Reasonable Option for MS Patients?":
    ...
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    Howie, that may be because you're in the QMB...

    Howie, that may be because you're in the QMB category. QMB = Qualified Medicare Beneficiary

    Lower-income people are in that category and don't have to pay premiums as I understand it. I'm a QMB...
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    Social Security COLA 1.6% for 2020

    Social Security's COLA will mean a 1.6% increase in benefits paid in 2020:

    https://www.ssa.gov/cola/
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    Step counts: 10/1/19 - 1000 steps 10/2/19 - ...

    Step counts:

    10/1/19 - 1000 steps
    10/2/19 - ? pedometer not working
    10/3/19 - ? pedometer not working
    10/4/19 - 1473 steps
    10/5/19 - 1236 steps
    10/6/19 - 1006 steps
    10/7/19 - ...
  8. Thread: October Chitchat

    by agate
    Replies
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    1,230

    That's really good, Sunshine. It must be terribly...

    That's really good, Sunshine. It must be terribly hard to fine-tune things so that you can avoid at least some of the spasticity.

    I was at the eye doctor yesterday, where once again cataract...
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    So glad you checked in, ssusan--and I hope that...

    So glad you checked in, ssusan--and I hope that the year ahead will be far better for you!
  10. Thread: October Chitchat

    by agate
    Replies
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    1,230

    I don't know if there's been a problem, Virginia....

    I don't know if there's been a problem, Virginia. I've been away most of the day. Just now I'm not noticing a problem.
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    Happy birthday, ssusan--October 9!

    Today is ssusan's birthday--I hope you're celebrating, ssusan!



    https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcQw-Odma1wTVJdttTGAL37ROQa9oTB53XpBsxZDTsP-phWo4qaxPw
  12. Hi Lostparent, and welcome! I'm really out of...

    Hi Lostparent, and welcome!

    I'm really out of my depth here as I usually just deal with MS but I do hope you can find some satisfactory answers for your questions. The advice from Rose (Earth...
  13. Thread: October Chitchat

    by agate
    Replies
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    1,230

    He pulls teeth too. I'm still taking quite a...

    He pulls teeth too.

    I'm still taking quite a lot of Tylenol for the flu shot but am hoping to get to the eye doctor tomorrow.
  14. Thread: October Chitchat

    by agate
    Replies
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    1,230

    I check on the weather too. I need to know what...

    I check on the weather too. I need to know what kind of clothes to wear and what might happen to the plants outside.
  15. Thread: October Chitchat

    by agate
    Replies
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    1,230

    Today I went to the doctor's office for a flu...

    Today I went to the doctor's office for a flu shot. It was the regular flu shot by my request, not the super-strength one.

    Usually it doesn't hit me with side effect until about 5 hours later but...
  16. Thread: October Chitchat

    by agate
    Replies
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    1,230

    The ice cream is to go with the cake for your...

    The ice cream is to go with the cake for your un-birthday--I get it. Presents will be gratefully accepted too.

    (He's aging faster than most because he has birthdays more often but at least he...
  17. Thread: October Chitchat

    by agate
    Replies
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    1,230

    Happy un-birthday to Howie. Is that cat Sam on...

    Happy un-birthday to Howie. Is that cat Sam on your keyboard again, typing disinformation?
  18. Thread: October Chitchat

    by agate
    Replies
    82
    Views
    1,230

    Yes, I love having no commercials. In fact, I...

    Yes, I love having no commercials. In fact, I usually mute them out if I'm watching any TV that has commercials, like the local news.

    About "The Good Wife"--I'm waiting for season 3 of "The Good...
  19. Replies
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    In the meantime, my step count for September...

    In the meantime, my step count for September averaged 1,269 steps/day (figured for 30 days).
  20. Thread: October Chitchat

    by agate
    Replies
    82
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    1,230

    Virginia, it's hard to imagine 100 or even 70s....

    Virginia, it's hard to imagine 100 or even 70s. Here the heat has been needed at night because it's around freezing.

    I don't think I get HBO either. I don't try to catch most TV programs. I'm too...
  21. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    I have TC's permission to share this:

    I have TC's permission to share this:
  22. Thread: October Chitchat

    by agate
    Replies
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    1,230

    Any chance that the lab is open on Saturdays? ...

    Any chance that the lab is open on Saturdays? Could you try playing both your MS and SPS cards and reminding the lab and/or the doctor that the longer an infection goes untreated, the harder it is...
  23. Thread: Hey

    by agate
    Replies
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    200

    Hi astralie or Ashlyn, *Welcome You've been...

    Hi astralie or Ashlyn,

    *Welcome

    You've been down a rocky road but it sounds as if you're keeping up with the schoolwork and getting out and about too.

    Hope you're looking around here and...
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    I've never really seen a deer in the wild....

    I've never really seen a deer in the wild. Several times someone I was with called my attention to a deer but all I saw was a flash of something. Deer must be real experts at getting out of sight...
  25. Thread: October Chitchat

    by agate
    Replies
    82
    Views
    1,230

    October Chitchat

    Fall is really here, and it's going to freeze tonight.

    That's really unusual for this area--much too early for a frost.

    Hope Howie is doing OK.

    Still no more word about Cat Dancer. I will be...
  26. Replies
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    For those who observe Rosh Hashanah--Happy New...

    For those who observe Rosh Hashanah--Happy New Year, and it's 5780:


    https://images.greetingsisland.com/images/cards/holidays/previews/apple-&-pomegranate-trees.png?auto=format,compress&w=440
  27. Thread: Jim's Journey

    by agate
    Replies
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    5,584

    Rose, doctors and test results can be so very...

    Rose, doctors and test results can be so very wrong. You already know that, I'm sure. Wasn't Jim told he had only a short time left to live but he proved that wrong? I'm hoping that this news is...
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    September 28--Happy anniversary to stillstANNding!

    September 28--Happy anniversary to stillstANNding!
  29. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    I had a message from TC. He says there will be...

    I had a message from TC. He says there will be "an in-house service here in mid-October." He will give details later.

    EDITED TO ADD: He was able to read this thread after a neighbor helped him by...
  30. Except for those steps I've been counting, I...

    Except for those steps I've been counting, I spend my waking time in a wheelchair--and the type of cushion as well as any adjustments you can make in it are very important. The Roho cushion isn't one...
  31. I'm glad to see that you're posting today. I...

    I'm glad to see that you're posting today. I happened to read a recent blog post of yours (9/22) and was concerned.

    There are many reasons why life is still good even though bad things seem to...
  32. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    Jeanie--and nuthatch too, I sent the information...

    Jeanie--and nuthatch too,
    I sent the information to you in a PM just now.
  33. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    No further details yet but Parsi and I are...

    No further details yet but Parsi and I are staying on the lookout.

    She could be so funny. I recall one time--I wasn't there but it was reported online--when Cat Dancer was visiting Peg (and it...
  34. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    I have received this message via Facebook from...

    I have received this message via Facebook from Tom Cat:

    Part of my reply may be showing up in the quoted material above. I can't seem to delete it. Anyway,
    I replied and asked him to let Parsi or...
  35. Thread: RIP Catdancer

    by agate
    Replies
    52
    Views
    1,256

    RIP Catdancer

    ​I'm sorry to bring this bad news. On Catdancer's Facebook page a niece posted (18 hours ago) that she has passed away.
  36. Replies
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    I'm entirely in agreement with you....

    I'm entirely in agreement with you. Unfortunately, as I probably posted a while back, I've had an odd change in my reaction to stress, and it's been going on for a year or two now. I can't take much...
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    Rose, most people will still be here, I believe. ...

    Rose, most people will still be here, I believe.

    This isn't as simple a rift as it might seem. I'll send you a PM. It's not something I can share here on the board.
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    Rose, I'm afraid that may have already...

    Rose, I'm afraid that may have already happened--and been happening for quite a while. We were more or less assured that there would be a way for us to discuss politics here even though it wouldn't...
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    Yes, that's one way of looking at it--picking up...

    Yes, that's one way of looking at it--picking up my marbles and going home. But there's also the stress involved in dealing with cyberpeople. Some people aren't up to dealing with stress well any...
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    I've removed the data about Ikoiko's past posts....

    I've removed the data about Ikoiko's past posts. And I don't want to inhibit anyone here. I won't be here any more.
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    In defense of my post (#133), I did feel that...

    In defense of my post (#133), I did feel that Ikoiko deserved a reply.
  42. Thread: Jim's Journey

    by agate
    Replies
    174
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    5,584

    Rose, your iPad SIM card saga sounded so much...

    Rose, your iPad SIM card saga sounded so much like my recent misadventure with a childproof pill bottle that I had to laugh--although these struggles with so much new technology and so many novel...
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    Ikoiko, some of us are trying hard NOT to make...

    Ikoiko, some of us are trying hard NOT to make assumptions. I for one, and when I posted about what is known about you and what might be going on in your life, I tried to make it clear that I had no...
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    Sure enough. ...

    Sure enough.

    https://en.wikipedia.org/wiki/Sterno

    I've seen cans of Sterno being sold in supermarkets but never bought any.

    I have heard of alcoholics helping themselves to cough medicines...
  45. Replies
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    Ikoiko, it sounds as if this was a while ago?...

    Ikoiko, it sounds as if this was a while ago? That doesn't make it any less relevant now but I think many people have learned over time that, as you say, the Internet is people--good and bad. And...
  46. Replies
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    Good idea, Howie. Each of us has real-life...

    Good idea, Howie. Each of us has real-life problems we're dealing with.

    Today brought news of the death of a friend of mine. We've been friends for 47 years. My son and her son are still friends....
  47. Replies
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    I'm having problems with the stress too,...

    I'm having problems with the stress too, Virginia, and know what you mean. We're most of us old timers here--including of course Ikoiko.

    Your suggestion about another way it could have been...
  48. Replies
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    Jeanie and Virginia, if Ikoiko's posts were among...

    Jeanie and Virginia, if Ikoiko's posts were among Cherie's reasons for leaving, that may be because Cherie must have been pretty upset lately. I've read through all of Ikoiko's previous posts,...
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    Howie, it's only a matter of time. You will be...

    Howie, it's only a matter of time. You will be found out.
  50. Replies
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    I've got through an annual trip to the neuro in...

    I've got through an annual trip to the neuro in spite of making a mistake about the time (my error) and therefore having problems rescheduling rides. I waited 2 hours in a drafty entryway for the...
  51. I believe that once you've had the HSCT...

    I believe that once you've had the HSCT treatment, you might not go back for any reason except to be monitored occasionally. You spend up to 11 days in the hospital, and the treatment takes several...
  52. Replies
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    Ikoiko, I don't think you chased her away. There...

    Ikoiko, I don't think you chased her away. There were reasons why she left, and you weren't one of them. Anyone with a public presence (teachers, real estate people, businesspeople, etc.) is taking...
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    Happy birthday, renee--September 13!

    renee hasn't said much lately but I think she pops in now and then. Happy birthday, renee!

    ...
  54. Replies
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    More power to you, Jeanie! You know what you want...

    More power to you, Jeanie! You know what you want to do and you're going to do it. That reunion will include you, I'm sure.
  55. Replies
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    I hate to quibble about the wording of your post,...

    I hate to quibble about the wording of your post, Rose, but you surely don't need the word "possible" in that sentence....:glee:
  56. Replies
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    Jeanie, as I read your post my mouth was hanging...

    Jeanie, as I read your post my mouth was hanging open in astonishment. You have clearly been working hard on your recovery. A trip of 300 miles would take several hours, right? I hope you have a...
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    I had already set up two possible rides with a...

    I had already set up two possible rides with a return pickup time at 1:15--figuring that I'd have over an hour for the appointment that I thought was at 12:00. But since it's 12:30, the doctor's...
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    Jeanie, I'm so glad I've been able to be on...

    Jeanie, I'm so glad I've been able to be on Medicaid all along. It seems to work so much more efficiently than the different private insurance plans. I go in with my Medicaid number or card, and...
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    One more major goofup on my part. Or on...

    One more major goofup on my part. Or on somebody's part. I goof up and quite often it's because I haven't heard right. That's what I think happened this time. It's scary.

    Weeks ago I set up an...
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    Rose, a daily banana has been part of my routine...

    Rose, a daily banana has been part of my routine for many years. I check every food I eat for potassium content (though it's not always listed) and try to choose whichever one has more of it.

    I've...
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    I did one load of laundry yesterday. I don't...

    I did one load of laundry yesterday. I don't understand how doing two loads of laundry is doing "nothing," Virginia. That sounds like a lot, and you changed sheets too.

    Yesterday it sounds as if...
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    I do have to take potassium supplements. I've...

    I do have to take potassium supplements. I've been taking the maximum dosage of them for many years. That was the problem--even with that maximum dosage, I had a low potassium level some months ago. ...
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    I've had some really good news. About 3 months...

    I've had some really good news.

    About 3 months ago I had routine blood work done, and the potassium was low. I've had this happen before, and each time I've managed to bring it back up. This time...
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    Being close to a store is good. Every time I've...

    Being close to a store is good. Every time I've moved I've tried to be close to a supermarket, pharmacy, and it was nice if a post office and hardware store were within easy reach as well. A bank...
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    But Howie, you're always making long trips to...

    But Howie, you're always making long trips to grocery stores and other places! That takes energy. Driving a car takes energy. (Says the person who doesn't drive. Well, I did drive for a very short...
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    Finally, my step count average for August (based...

    Finally, my step count average for August (based on 30 days):

    1,349

    I'm shouting it because it's the highest average in the last 10 months.
  67. Replies
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    Clinical trial opportunity

    The National MS Society has sent an announcement of a clinical trial that doesn't involve taking any new drugs so far as I can figure out. Some here might be eligible. It's called Behavioral...
  68. Replies
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    Hi robertinnevada, *groupwelcome Sorry you...

    Hi robertinnevada,

    *groupwelcome

    Sorry you can't retrieve your old identity but those things happen.

    Sorry too that you had problems with this forum in the past.

    As you may have noticed,...
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    Here's a post by Gary about gabapentin: ...

    Here's a post by Gary about gabapentin:

    http://www.braintalkcommunities.org/showthread.php/100689-Numbness-and-Itching?p=44749&highlight=gabapentin#post44749

    You can find other posts by various...
  70. The video may have been made on a low budget and...

    The video may have been made on a low budget and isn't looking as professional as some. I'd like to cheer those people on though, for trying to call attention to some of the daily situations people...
  71. Yes, it moves fast and jerkily--and the sound...

    Yes, it moves fast and jerkily--and the sound isn't so easy to understand either. Very ironic.
  72. Cafe where people can find out (a little) about what living with MS feels like

    Video of cafe showing people what living with MS feels like:

    https://www.facebook.com/Independent.ie/videos/10156463868943470/
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    I recall the days when I had to transport garbage...

    I recall the days when I had to transport garbage cans. It was hard then, and I was healthy then. Jeanie, I don't know how you even got the thing to fit on your scooter. That's amazing.

    In Chicago...
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    Sunshine, now that I know about those Gripmaster...

    Sunshine, now that I know about those Gripmaster gadgets, I of course have to have one. I'm putting it on my list of "must-haves." I can add it to my collection of hand-strengthening devices. This...
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    These little annoyances will strike most people...

    These little annoyances will strike most people here as laughable nonproblems but here they are:

    The night before last I was trying to open a bottle of pills. I have trouble with the childproof...
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