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Hi:

I was told by my endocrinologist to get one because I developed DI. DI or diabetes insipidus is caused by the pituitary gland not generating enough anti-diuretic hormone causing copious...

Hi xavitus1316:

Thanks for sharing your experience! Are you back to driving yet? Is remembering where you parked the car a problem? Have you noticed any residual memory deficits or behavioral...

Iwas34:

Hi! Welcome to the group. I was 30 and can relate to some of what you said. We used to have an old thread located at...

Hi all:

I've read that sudden death has not been reported as having been caused by colloid cysts measuring less than 1 cm. For instance, the article at the following states:

Since the majority...

Hi Joan:

I'm sorry that you're now a member of the club. At that size, you may be advised to have serial imaging for observation to check for growth and hydrocephalus. Some centers have a...

Hi Andrea:

I'm sorry that you're now a member of the club... How did the lumbar puncture go? I had one after my surgery too. But as I was reading a lumbar puncture is contra indicated in...

Hski88:

Knowing that you have a colloid cyst is a good thing considering the alternative! Did they give dimensions on its growth? Some centers will operate on any cyst over 1 cm regardless of...

CCSurvivor:

Personally, I believe all colloid cysts should be removed and not just those that are symptomatic or have reached a certain size. The reality is that some centers will only consider...

Bill:

Thanks! That was a good link. I was pleased to read:


... we usually recommend cyst removal, including in the case of asymptomatic cysts that have already led to disturbance of...

Bill:

Please don't. But if you must, I understand. I often peruse your posted links and find them interesting. I often do repeated google searches and google news searches on "colloid cyst". I...

Hi all:

I've read that sudden death has not been reported for cysts smaller than 1cm and that some centers mandatorily operate on cysts >= 1cm. However, that doesn't mean that it hasn't happened....

Hi James:

The first couple of headaches that I remember lasted hours but later they would sometimes subside after a few minutes. The literature talks often of colloid cyst headaches as having a...

Thanks Bill. That last footnote provided a link to a good goto document that I wished was there for me when I first got my diagnosis. See it at:

Full Scope of Options

Hi all:

I've seen it mentioned that some centers have a policy of operating on all cysts > 1cm, but I found a book "Pediatric Hydrocephalus" that states:


In the opinion of Kondziloka and...

Hi all,

I've noticed that if I repeat in my head upon sleeping that "I remember my dreams easily" I will remember them more often than if I repeat in my head that "I will remember my dreams upon...

Hi:

I thought the following quote was an eye opener:


"Nevertheless, in our opinion, A DECISION NOT TO HAVE THIS LESION REMOVED IS A FLIRTATION WITH DEATH." --...

Hi ydiablo:

I'm no expert, just a survivor. I would say that you're right at the threshold for surgery. I've read that surgery is generally recommended for cysts over 1cm.

9mm would seem...

Hi earthnsky26:

I’m sorry that I don’t have time to say more presently... Did you have what’s known as an interhemispheric transcallosal resection? This approach to removing the colloid cyst is...

Hi Tris:

A colloid cyst almost always occurs in the third ventricle near the foramina of Monro. A good summary of the cyst and your options can be found at...

Hi all:

I have a new diagnosis of schizoaffective disorder. Evidently, it can be precipitated by life stress and may go away on its own eventually. I have good results with meds. I don't think...

Hi dana2050:

I'm sorry to hear about your mother. I did find these 2 articles that you might be interested in reading. I don't have the full source but here they are as follows:

Hypothesis...